Survivor Spoonie Edition: What's in Your Bag
Manage episode 519858443 series 3407225
Ever wish your bag could calm a flare before it starts? We empty our real spoonie survival kits and show exactly how we plan for pain spikes, long waits, and the kind of detours that come with chronic illness. From compact pain tools to mood-lifting comforts, you’ll hear how we choose items that solve predictable problems—then scale up for travel without hauling a suitcase.
We start with the everyday carry essentials: hand sanitizer, lens wipes, and multiple lip care options because dry mouth and dehydration hit hard. Ginger chews help with nausea and jitters, while compression gloves and lidocaine patches offer quick relief for aching hands and joints. We share why a sanitizer-pen is a genius hybrid, how a tiny bio stick helps settle the gut, and why two forms of Benadryl can be a lifesaver. Snacks matter just as much: roasted nuts, protein bars, and freeze-dried fruit keep energy stable when appointments run long. A favorite verse card in the wallet can reset a spiral faster than you’d think.
Then we move beyond purses to the systems that keep us steady at home and on the go. A nightstand or chair-side kit holds electrolytes, dry mouth lozenges, and a dedicated snack box so you don’t need to stand when flaring. Caregivers will find easy wins: labeled drawers, a ready-to-grab travel tote, and a weekly pill organizer that flips to show what’s been taken. For longer outings, we add a TENS unit, trigger point tool, multiple electrolyte formats (powders, chews, capsules, even pickle juice), and a bento-style snack so eating doesn’t feel like a chore. The goal is predictability, not perfection—small, smart choices that make hard days workable.
If you’re building your first kit or upgrading an old one, we’ve got practical packing lists, product ideas, and simple routines that reduce stress and decision fatigue. Tell us what we missed, share your favorite items, and help other spoonies build their own safety nets. Subscribe, leave a review, and drop your must-carry pick—what’s the one item you never leave home without?
Keep your spoons close and support system closer.
Support:
https://rarepatientvoice.com/Myspooniesisters/
https://www.etsy.com/shop/MySpoonieSisters
https://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen10)
Website: https://myspooniesisters.com/
Discount Codes: GIANT Microbes | Gag Gifts, Teacher Gifts, Doctor Gifts, Gifts for Girlfriends and Boyfriends code SPOONIE20 for 20% off
Chapters
1. Survivor Spoonie Edition: What's in Your Bag (00:00:00)
2. Welcome And Topic Setup (00:00:16)
3. Jen Unpacks Her Bag (00:00:41)
4. Lip Care, Laughs, And Snacks (00:05:28)
5. Headphones, Pens, And Pain Relief (00:06:24)
6. Comfort Items And Inspiration (00:08:58)
7. Essential Oils And Emergency Meds (00:08:58)
8. Linia’s Nightstand-To-Go System (00:10:37)
9. Caregiver Tips And Pill Management (00:12:18)
10. Protein, Planning, And Portable Snacks (00:14:46)
11. Scaling Up For Longer Outings (00:16:38)
163 episodes