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Behind the Mask: Raw Conversations When the Spoons Run Out

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Manage episode 505749726 series 3407225
Content provided by Jen Weaver. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Jen Weaver or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://podcastplayer.com/legal.

What does chronic illness really look like when no one's watching? When the "I'm fine" mask slips away?
The Spoonie Sisters gather for an unfiltered, emotional conversation about the reality behind the façade. This episode dives deep into what happens when medication stops working, when anger takes over, and when your body betrays you despite doing "everything right."
Linnea opens up about her current flare, sharing how she's processing rage through unexpected methods (yes, screaming into pillows actually helps!). Meanwhile, Jen reveals her struggle with weight gain and confidence - how gaining 26 pounds affected not just her body but her willingness to show up online. The sisters discuss the complexity of watching others thrive on social media while you're suffering, and why sometimes taking a break from even your favorite accounts is necessary for mental health.
The conversation takes powerful turns as they explore the pressure chronically ill people put on themselves to perform and push through. "Jesus took a break. Olympians take breaks. Surgeons take breaks. Why are you any different?" This permission to rest contradicts everything we've been taught about proving our worth despite illness.
Whether you're battling an autoimmune condition, supporting someone who is, or simply trying to understand invisible illness better, this episode offers a rare glimpse into the emotional landscape of chronic illness. The sisters share practical strategies for flares, meal prepping when energy is low, and the life-changing power of choosing your response to challenges.
Listen in and remember: behind every "I'm fine" often lies a complex struggle, but with proper support and self-compassion, we can navigate these challenges without sacrificing our authentic selves. Your spoonie sisters are here to remind you that you're enough - every day that ends in Y.

Send us a text

Delivering Happy Mail around the world!

We have sent thousands of cards to isolated illness warriors, facilitated hundreds of pen pal relationships, and reached countless family members, caregivers, and medical professionals with messages of hope and acknowledgment.

Join our mission to send 100,000 cards of support to patients with long-term illnesses.

About our organization | Cards2warriors

Are you living with a chronic illness and want to make your voice heard? Rare Patient Voice connects patients and caregivers with research opportunities—so you can share your experiences and get paid for your time! Your insights help drive real change in healthcare.

Let's Get Started - Rare Patient Voice

Keep your spoons close and support system closer.

Support the show

Support:
https://rarepatientvoice.com/Myspooniesisters/
https://www.etsy.com/shop/MySpoonieSisters
https://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen10)

Website: https://myspooniesisters.com/

Discount Codes: GIANT Microbes | Gag Gifts, Teacher Gifts, Doctor Gifts, Gifts for Girlfriends and Boyfriends code SPOONIE20 for 20% off

  continue reading

Chapters

1. Behind the Mask: Raw Conversations When the Spoons Run Out (00:00:00)

2. Welcome to Behind the Mask (00:00:16)

3. Linnea's Flare: Anger and Reframing (00:01:47)

4. Screaming Into Pillows: Releasing Rage (00:05:22)

5. Disney Princess Face: Jen's Struggles (00:08:41)

6. Meal Prepping During Flares (00:20:39)

7. Taking Breaks and Self-Care (00:28:22)

8. What We Choose Every Day (00:40:47)

9. Final Thoughts and Sisterhood (00:48:43)

153 episodes

Artwork
iconShare
 
Manage episode 505749726 series 3407225
Content provided by Jen Weaver. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Jen Weaver or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://podcastplayer.com/legal.

What does chronic illness really look like when no one's watching? When the "I'm fine" mask slips away?
The Spoonie Sisters gather for an unfiltered, emotional conversation about the reality behind the façade. This episode dives deep into what happens when medication stops working, when anger takes over, and when your body betrays you despite doing "everything right."
Linnea opens up about her current flare, sharing how she's processing rage through unexpected methods (yes, screaming into pillows actually helps!). Meanwhile, Jen reveals her struggle with weight gain and confidence - how gaining 26 pounds affected not just her body but her willingness to show up online. The sisters discuss the complexity of watching others thrive on social media while you're suffering, and why sometimes taking a break from even your favorite accounts is necessary for mental health.
The conversation takes powerful turns as they explore the pressure chronically ill people put on themselves to perform and push through. "Jesus took a break. Olympians take breaks. Surgeons take breaks. Why are you any different?" This permission to rest contradicts everything we've been taught about proving our worth despite illness.
Whether you're battling an autoimmune condition, supporting someone who is, or simply trying to understand invisible illness better, this episode offers a rare glimpse into the emotional landscape of chronic illness. The sisters share practical strategies for flares, meal prepping when energy is low, and the life-changing power of choosing your response to challenges.
Listen in and remember: behind every "I'm fine" often lies a complex struggle, but with proper support and self-compassion, we can navigate these challenges without sacrificing our authentic selves. Your spoonie sisters are here to remind you that you're enough - every day that ends in Y.

Send us a text

Delivering Happy Mail around the world!

We have sent thousands of cards to isolated illness warriors, facilitated hundreds of pen pal relationships, and reached countless family members, caregivers, and medical professionals with messages of hope and acknowledgment.

Join our mission to send 100,000 cards of support to patients with long-term illnesses.

About our organization | Cards2warriors

Are you living with a chronic illness and want to make your voice heard? Rare Patient Voice connects patients and caregivers with research opportunities—so you can share your experiences and get paid for your time! Your insights help drive real change in healthcare.

Let's Get Started - Rare Patient Voice

Keep your spoons close and support system closer.

Support the show

Support:
https://rarepatientvoice.com/Myspooniesisters/
https://www.etsy.com/shop/MySpoonieSisters
https://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen10)

Website: https://myspooniesisters.com/

Discount Codes: GIANT Microbes | Gag Gifts, Teacher Gifts, Doctor Gifts, Gifts for Girlfriends and Boyfriends code SPOONIE20 for 20% off

  continue reading

Chapters

1. Behind the Mask: Raw Conversations When the Spoons Run Out (00:00:00)

2. Welcome to Behind the Mask (00:00:16)

3. Linnea's Flare: Anger and Reframing (00:01:47)

4. Screaming Into Pillows: Releasing Rage (00:05:22)

5. Disney Princess Face: Jen's Struggles (00:08:41)

6. Meal Prepping During Flares (00:20:39)

7. Taking Breaks and Self-Care (00:28:22)

8. What We Choose Every Day (00:40:47)

9. Final Thoughts and Sisterhood (00:48:43)

153 episodes

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