Understanding PDA: A Parent's Perspective - A Conversation Between Jannice Jones And Alice Running The NEURODIVERGENT podcast

Understanding PDA: A Parent's Perspective - a conversation between Jannice Jones and Alice Running

3d ago 37:01

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Keywords

Neurodivergent, Autism, PDA, Parenting, Support Systems, Parental Blame, Double Empathy, Mental Health, Trauma, Resources

Summary

In this episode of the NeuroDivergent podcast, host Jannice Jones speaks with Alice Running, an author and advocate for neurodivergent families. They discuss the complexities of autism and Pathological Demand Avoidance (PDA), the challenges parents face in navigating support systems, and the systemic issues that lead to parental blame. The conversation also touches on the double empathy problem, the trauma experienced by neurodivergent families, and the importance of understanding and support. Alice shares insights from her own experiences as a mother of neurodivergent children and offers resources for parents seeking help.

Takeaways

Autism is a part of human experience, not a deficit.
Less demanding approaches can be more effective for children with PDA.
Access to support varies greatly by location.
Parental blame is a common issue in neurodivergent families.
Systemic trauma affects parents of neurodivergent children.
Understanding the double empathy problem is crucial for effective communication.
Parents often know their children better than professionals do.
The need for better training and understanding in support systems is critical.
Resources like the PDA Society can provide valuable support.
Future discussions on autism and parental blame are necessary.

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Chapters

1. Introduction to NeuroDivergent Podcast and Guest Introduction (00:00:00)

2. Understanding Autism and PDA (00:02:48)

3. The Concept of Pathological Demand Avoidance (PDA) (00:05:36)

4. Scaffolding Strategies for Supporting Children with PDA (00:08:16)

5. Challenges in Accessing PDA Support and Diagnosis (00:10:57)

6. Parental Blame and Systemic Issues in Autism Support (00:13:49)

7. The Impact of Trauma on Parents of Autistic Children (00:16:31)

8. Double Empathy and Communication Challenges (00:19:21)

9. Resources and Support for Parents of Autistic Children (00:22:10)

10. Conclusion and Future Works (00:25:11)

11 episodes