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Inhibitors & Rares & Re-Balancing Explained

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Manage episode 502344457 series 1362347
Content provided by BloodStream Media. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by BloodStream Media or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://podcastplayer.com/legal.

This week on Ask The Expert, the script is being flipped for patients with inhibitors and rare factor deficiencies! For years, treatment options were scarce—or even nonexistent. Now, rebalancing agents are changing the game, restoring clotting balance without relying on replacement factors.

Amy is joined by Dr. Ben Samuelson Jones, Dr. Tammy Singleton, Dr. Patrick Ellsworth, and Dr. Mark Redding as they take listeners on a journey through how these groundbreaking therapies are bringing new hope to people with hemophilia B, inhibitors, and ultra-rare bleeding disorders.

From inhibitors to ultra-rare conditions, this episode dives into the science, stories, and breakthroughs that are reshaping the future of bleeding disorder care. Don’t miss it!

Presenting Sponsor:

Presented by Sanofi

Join Shellye as she shares her inspiring journey as a woman living with hemophilia. After years of unanswered questions, her diagnosis highlights the critical role of health literacy in bridging care gaps. Through advocacy, Shellye raises awareness and empowers underserved communities. Watch her story and see how health literacy can break barriers and transform lives. Click here to watch her story: Sanofi – See Hemophilia Through My Eyes: Women & Girls

For too long, women and girls who bleed have been dismissed. Left out of the narrative. Ignored by the system. But not anymore.

In our new film, “Dismissed,” meet Isabelle—a 15-year-old with hemophilia who’s using her voice to uplift the unheard. Alongside her are four powerful stories of women challenging what’s "normal" and demanding recognition, care, and justice.

This is more than a film. It’s a movement.

📽️ Watch and share the trailer now. Learn more at http://dismissedfilm.com/

Show Notes:

Ask the Expert is produced by Believe Limited, and is found only on the BloodStream Media Podcast Network.

Presented by Sanofi

Subscribe to the Ask the Expert

 Did you know BloodStreamMedia.com is your one-stop shop for all podcasts for the bleeding disorders and rare disease community?

BloodStreamMedia.com

BloodStream Media on Facebook

→ BloodStream Media on Instagram

→ BloodStream Media on LinkedIn

  continue reading

53 episodes

Artwork
iconShare
 
Manage episode 502344457 series 1362347
Content provided by BloodStream Media. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by BloodStream Media or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://podcastplayer.com/legal.

This week on Ask The Expert, the script is being flipped for patients with inhibitors and rare factor deficiencies! For years, treatment options were scarce—or even nonexistent. Now, rebalancing agents are changing the game, restoring clotting balance without relying on replacement factors.

Amy is joined by Dr. Ben Samuelson Jones, Dr. Tammy Singleton, Dr. Patrick Ellsworth, and Dr. Mark Redding as they take listeners on a journey through how these groundbreaking therapies are bringing new hope to people with hemophilia B, inhibitors, and ultra-rare bleeding disorders.

From inhibitors to ultra-rare conditions, this episode dives into the science, stories, and breakthroughs that are reshaping the future of bleeding disorder care. Don’t miss it!

Presenting Sponsor:

Presented by Sanofi

Join Shellye as she shares her inspiring journey as a woman living with hemophilia. After years of unanswered questions, her diagnosis highlights the critical role of health literacy in bridging care gaps. Through advocacy, Shellye raises awareness and empowers underserved communities. Watch her story and see how health literacy can break barriers and transform lives. Click here to watch her story: Sanofi – See Hemophilia Through My Eyes: Women & Girls

For too long, women and girls who bleed have been dismissed. Left out of the narrative. Ignored by the system. But not anymore.

In our new film, “Dismissed,” meet Isabelle—a 15-year-old with hemophilia who’s using her voice to uplift the unheard. Alongside her are four powerful stories of women challenging what’s "normal" and demanding recognition, care, and justice.

This is more than a film. It’s a movement.

📽️ Watch and share the trailer now. Learn more at http://dismissedfilm.com/

Show Notes:

Ask the Expert is produced by Believe Limited, and is found only on the BloodStream Media Podcast Network.

Presented by Sanofi

Subscribe to the Ask the Expert

 Did you know BloodStreamMedia.com is your one-stop shop for all podcasts for the bleeding disorders and rare disease community?

BloodStreamMedia.com

BloodStream Media on Facebook

→ BloodStream Media on Instagram

→ BloodStream Media on LinkedIn

  continue reading

53 episodes

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