Best Bleedingdisorders Podcasts (2026)

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That's A Wrap! Season One In Review 25:48

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3d ago25:48

25:48

Season One comes to a thrilling close on this finale of Ask the Expert! Join Amy B as she brings back all of our amazing guests—Dr. Tammy Singleton, Dr. Mark Reding, Dr. Amy Dunn, Dr. Ben Samelson Jones, Dr. Patrick Ellsworth, and Dr. Janice Stabler—for a fast-paced, unforgettable review of everything we've explored this year. We're diving into the…

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Blood Brothers - Part 3 58:53

4h ago58:53

58:53

In this special year-end episode of the Bloodstream Podcast, Patrick and guest host Mark Pangilinan conclude their powerful three-part Blood Brother series featuring the voices and stories of men living with bleeding disorders across the country. Together, they explore themes of complicated grief, advocacy, identity, fatherhood, discrimination, and…

1
The Stress of Shifting Roles with Cheri Clark 50:15

6d ago50:15

50:15

On this episode of BloodStream, Cheri Clark opens up about juggling life as a nurse, patient, caregiver, and board member, all while managing her own health. She shares the pressure of always saying "I'm fine," the moments she's pushed past her limits, and the lessons she's learning about setting boundaries that actually stick. We also hear from Ni…

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Blood Brothers - Part 2 37:28

13d ago37:28

37:28

This episode of the Bloodstream Podcast continues the Blood Brother Collaboration, featuring candid conversations among men living with bleeding disorders. Guests share personal stories of resilience, complicated grief, and the importance of community support. The discussion highlights the unique challenges faced across the lifespan, from childhood…

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Blood Brothers - Part 1 1:02:19

27d ago1:02:19

1:02:19

On this special episode of the Bloodstream Podcast, hosts Patrick James Lynch and Marc Pangilinan kick off a three-part Blood Brother Collaboration, featuring heartfelt stories and insights from men across the bleeding disorders community. The discussion centers on lived experiences, including complicated grief, joining the community, wearing multi…

1
Future Flow – Research & What's Next in Hemostasis 19:52

1M ago19:52

19:52

In this episode of Ask the Expert, Amy B. dives into the future flow of hemostasis research, exploring the cutting-edge therapies shaping bleeding disorder care. Join Drs. Patrick Ellsworth, Janice Staber, and Ben Samelson-Jones as they break down rebalancing agents, RNA therapies, and patient-driven discoveries that are guiding smarter, more preci…

1
I'm Fine is back! Featuring Benjamin Denman 27:16

1M ago27:16

27:16

In this episode of BloodStream, we look back at the history of gene therapy and highlight key voices from Portraits of Progress. We also share the story behind I'm Fine, featuring community advocate Benjamin Denman, recently honored at the Hope Gala. Plus, we introduce HFA's new Voice of the Community initiative and how you can get involved in shap…

1
The Red Ink Project & Global Action Network for Sickle Cell 54:00

1M ago54:00

54:00

This week on BloodStream, we're talking to changemakers. Elsa and Ann Kendall from The Red Ink Project share how they're shifting the story for women and girls in bleeding disorders. And advocate Lanre Tunji-Ajayi joins us to discuss building global networks for sickle cell and other inherited blood disorders. A conversation about voice, visibility…

1
The Rare Factor – Deficiencies & Re-Balancing Strategies 23:25

2M ago23:25

23:25

Join host Amy Board as we continue to dive into the evolving world of bleeding disorder treatments. This episode of Ask the Expert explores how emerging therapies—like rebalancing and non-factor agents—are tested, monitored, and kept safe. With insights from Drs. Mark Redding, Janice Stabler, and Tammy Singleton, we break down the complexities of d…

1
Beyond the Diagnosis 40:08

2M ago40:08

40:08

Art and science collide on this episode of BloodStream Podcast! Hosts Patrick James Lynch and Amy Board bring stories that inspire and inform the bleeding disorders community. Patty Weltin and the Beyond the Diagnosis exhibit show how artists bring portraits of children with life-altering diseases to life. These works travel to hospitals, medical s…

1
Joint Health and Gene Therapy - Live from BDC! 1:04:13

2M ago1:04:13

1:04:13

We're live at BDC! Host Amy Board take you straight to the exhibit hall floor, chatting with doctors like Drs. Quon, Sidonio, and Radak, plus patient advocates Collin Johnson and Matt Capsel. From man-on-the-street interviews to a touching story from Greg, this episode reminds us all to run—not walk—towards science. Join us for real conversations, …

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Channel swimmer (and blood brother!) Tim Stowers 33:29

3M ago33:29

33:29

On this episode of BloodStream, hosts Patrick James Lynch and Amy Board share stories of remarkable achievement and progress in bleeding disorders. Hear from Tim Stowers, a severe hemophilia A patient who has summited Everest and completed solo English Channel swims, as he shares his journey of resilience and determination. Plus, get the latest upd…

1
Women and Clotting - What You Need to Know 18:12

3M ago18:12

18:12

In this episode of Ask the Expert, we focus on women with bleeding disorders — a group that has historically been overlooked in research and clinical care. Heavy menstrual bleeding, mild and moderate hemophilia, and von Willebrand disease have often gone underdiagnosed or mischaracterized, leaving many women without the care they need. Amy Board si…

1
WHO Guidelines Updated! 42:56

3M ago42:56

42:56

On this episode of BloodStream, we explore the World Health Organization's updates to the Essential Medicines List and what they mean for bleeding disorders care. Hemophilia B mom and creator Jesseca Lockie shares her perspective on advocacy and storytelling online, while Domenic and his mom open up about how gene therapy has transformed his daily …

1
Emerging treatment for vWD?! 42:30

3M ago42:30

42:30

Is there a new treatment for von Willebrand Disease on the horizon? This week on BloodStream, we're joined by Jess Swann and Dr. Ben Kim from Star Therapeutics to talk about their promising pipeline and what it could mean for the vWD community. From science to support, they share their commitment to innovation and the people at the heart of it all.…

1
Patrick's Surgery and Ed Rogoff's book 46:04

4M ago46:04

46:04

Edward Rogoff, Blood Brother, NY chapter board member, and author of Scary Diagnosis, joins us on today's BloodStream. We hear the powerful stories behind community tattoos and get an update from PJL on his ankle surgery and recovery. This episode is full of resilience, creativity, and the strength we find in unexpected places. Presenting Sponsor: …

1
Inhibitors & Rares & Re-Balancing Explained 18:10

4M ago18:10

18:10

This week on Ask The Expert, the script is being flipped for patients with inhibitors and rare factor deficiencies! For years, treatment options were scarce—or even nonexistent. Now, rebalancing agents are changing the game, restoring clotting balance without relying on replacement factors. Amy is joined by Dr. Ben Samuelson Jones, Dr. Tammy Single…

1
Gene Therapy Around the World 35:04

4M ago35:04

35:04

Do you ever wonder who's actually getting gene therapy around the world? So have we! Dr. Hank Greely from Stanford and Simon Fletcher, a nurse and PhD Candidate from Oxford, break it down in a way that's eye-opening and real. Then stick around for Dr. Radek Kaczmarek's update on the latest game-changing research. Two fascinating chats, one episode,…

1
Actress Sami Rappoport's short film, VIII. Plus Jeff & Barb with Dr. Joanna Davis 54:27

5M ago54:27

54:27

What do a heartfelt short film, a Hollywood actress, and a powerful community story all have in common? This week's BloodStream Podcast. Actress Sami Rappoport shares how her grandfather's life with hemophilia inspired her latest project, and Dr. Joanna Davis sits down with Barb Forss and Jeffrey Moualim for a conversation you won't want to miss. J…

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Bleeding Disorders Conference preview with NBDF's Phil Gattone 22:52

5M ago22:52

22:52

Phil Gattone joins the latest BloodStream Podcast to preview NBDF's upcoming Bleeding Disorders Conference, coming mid-August. Plus, Amy and Patrick take a trip down camp memory lane, sharing summer stories from their days at hemophilia camp. Tune in for a mix of updates and nostalgia. Presenting Sponsor: Takeda, visit bleedingdisorders.com to lear…

1
Quick Recap! Your Clotting Cheat Sheet 20:44

5M ago20:44

20:44

Rev your engines and put the pedal to the metal on a wild ride through the clotting cascade! Amy Board and a pit crew of medical experts take you on an uproarious recap journey through the first six episodes, using engines, dominoes, and treasure maps to drive their points home. But hold onto your helmets—there's fresh and exciting science just aro…

1
Hemophiliac of Love with Max Feinstein (!!) 40:08

5M ago40:08

40:08

Our bud, Max Feinstein, is back with us to share the outcome of his elbow surgery and he surprises us with a cover of Hemophiliac of Love (!!). Plus, the most pressing question when it comes to gene therapy for hemophilia B: How long does it last? Hanna does a deep dive into that very question with guest, Dr. Andrew Davidoff. Presenting Sponsor: Ta…

1
Type 3 vWD, growing up and out with Rick Lindfors 28:46

5M ago28:46

28:46

Rick Lindfors is cool. He lives with Type 3 von Willebrand and is in the Minnesota Search and Rescue Dog Association. He sits down with Patrick to chat about how he saw it as an opportunity to give back to his younger self, who, for a time, didn't have anyone coming to rescue them. Listen in to his inspiring story - only on BloodStream! Presenting …

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Dr. Erik Berntorp (the best-kept secret in vWD) and cancer podcasting legend, Matthew Zachary 48:38

6M ago48:38

48:38

Dr. Erik Berntorp (medical doctor, researcher, and professor at Lund University in Sweden) joins us to discuss something special related to von willebrand disease and Matthew Zachary, award-winning Cancer Maverick, Keynote Speaker, and Pioneering Podcaster sits down with Patrick to chat all things advocacy and media! Presenting Sponsor: Takeda, vis…

1
Fixing the Scales - How Re-Balancing Agents Work 23:14

6M ago23:14

23:14

In this episode of Ask the Experts, host Amy Board breaks down one of the most exciting developments in bleeding disorders treatment — rebalancing agents. Think of your body's clotting system like a seesaw: when everything's working right, it's balanced. But in bleeding disorders, the scale tips. Instead of adding what's missing (like clotting fact…

1
New Treatment Options and Trials 58:44

6M ago58:44

58:44

New treatment options are here for the hemophilia community! Learn more in Patrick's conversation with Craig Benson and our latest Gene therapy segment that focuses on the psychological impact of gene therapy. Plus, we share news about the Genentech and Spark integration. Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. It's a…

1
Stop the Bleeding!, a retrospective 57:41

6M ago57:41

57:41

Stop the Bleeding! is celebrating 14 seasons of using comedy and entertainment to raise awareness and educate about hemophilia and other bleeding disorders. Join creator, director, and star, Patrick James Lynch, in a retrospective with director and writer Jim Fagan as they reminisce about the show's characters and conflicts, and how entertainment &…

1
Aging with a Bleeding Disorder 1:11:03

7M ago1:11:03

1:11:03

Join us for an episode dedicated to aging with hemophilia, with several stories from our community. We hear from Jeffrey Moualim & Barb Forss, and Patrick sits down with Prisilla Oren, while Hanna chats with Walter Justus. It's a special episode to celebrate the strength of our community. Presenting Sponsor: Takeda, visit bleedingdisorders.com to l…

1
Hemostasis and Current Treatments 16:21

7M ago16:21

16:21

In this episode, Amy trades medical jargon for construction metaphors as she takes us on a journey through hemostasis, the body's natural way of stopping a bleed. But what happens when the repair crew is understaffed—or missing entirely? That's where factor replacement therapy comes in. Amy and our experts explain how it works, why timing matters, …

1
NBDF CEO weighs in on current events 54:25

7M ago54:25

54:25

NBDF CEO, Phil Gattone, is back on the show to share his thoughts on the current events happening in our bleeding disorder community. Plus, Hanna speaks with Stanford law professor Dr. Hank Greely and legendary hematologist Dr. Margaret Ragni about how we know when gene therapy is the right choice—and is our system ready to support it? And, an inte…

1
Medicaid Cuts and vWD Clinical Trials 1:08:14

8M ago1:08:14

1:08:14

Potential Medicaid cuts are looming that could affect our community. Hear how you can take action! We also have exciting news about a clinical trial for von Willebrand's disease and a special community story from Kayla Klein and her mother, Nancy Rodgers. Plus, Patrick has some fantastic updates from the WFH's Comprehensive Care Summit in Dubai. Pr…

1
Pump the Brakes! – How Anti-Coagulation Works 15:49

8M ago15:49

15:49

On this exciting episode of Ask the Expert, join Amy as we delve into the fascinating world of blood clotting and anticoagulant therapy. We'll explore the clotting process with fun and relatable party analogies, featuring expert insights from Dr. Ben and Dr. Patrick. Discover how vital components like Protein C, Protein S, antithrombin, and TFPI wo…

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New Music from Trevor Martin and info about Deliver Us, an upcoming documentary 1:24:28

8M ago1:24:28

1:24:28

One of our most stacked episodes in a while, featuring a chat and new music with Blood Brother, Trevor Martin. We also have Dr. Richard Lemon on the latest Gene therapy segment discussing the implications of recent hemophilia B gene therapy data. Plus, Allegra Hill and Kimberly Durdin from the only Black-owned birthing center in LA, and the visiona…

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Shakeup at CDC - What does it mean??? 40:58

9M ago40:58

40:58

On April 1st, the Administration announced drastic changes and reductions to the federal health programs, one being the Division of Blood Disorders CDC, greatly affecting the bleeding disorders community. To discuss these concerns, we welcome a familiar face to many of you - Johanna Gray, federal policy advisor to NBDF and all-around wonderful huma…

1
The Big Three – Factor 8 + Factor 9 = Thrombin 19:29

9M ago19:29

19:29

Dive into the crucial roles of Factor VIII, Factor IX, and thrombin in the blood clotting process. Hosts Amy and Patrick introduce expert Dr. Benjamin J. Samelson-Jones to discuss the interplay between these factors, including how they activate each other and form clots. Featuring insights from Dr. Mark Reding on the myriad functions of thrombin, t…

1
Striking the Right Balance – Why Does it Matter in Hemophilia Treatment? 13:16

9M ago13:16

13:16

This episode of "Ask the Expert" titled "Striking the Right Balance – Why Does it Matter in Hemophilia Treatment?" delves into the concept of rebalancing in hemophilia treatment. Hosted by Amy Bord, the episode features expert insights from Dr. Ben Samuelson Jones, Dr. Patrick Ellsworth, and Dr. Mark Redding. They explain how hemophilia treatments …

1
I'm Fine: The Devil You Know 29:19

9M ago29:19

29:19

In this special pop-up episode of the Bloodstream Podcast, host Patrick James Lynch discusses the discontinuation of two Takeda bleeding disorder products with Anthea Cherednichenko, Takeda's VP Franchise Head Hematology and Transplant. Additionally, the 'I'm Fine' segment, sponsored by Sanofi, explores why people cling to the notion of being 'fine…

1
HFA CEO Dan Kelsey & Gene Therapy w Brendan Hayes 37:59

9M ago37:59

37:59

HFA Symposium is this weekend, and we have CEO Dan Kelsey on the podcast to tell us all about it! Plus, a gene therapy segment with the fantastic Brendan Hayes about what she's hearing in the community about gene therapy for hemophilia B. Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. Show Notes: Subscribe: The BloodStream P…

1
How Does Your Blood Clot?–The Clotting Cascade Explained 17:32

9M ago17:32

17:32

In this episode of 'Ask the Expert,' host Amy Board dives into the clotting cascade and explains how our blood clots. Alongside experts Dr. Ben Samuelson Jones, Dr. Amy Dunn, Dr. Mark Redding, and Dr. Patrick Ellsworth, Amy unpacks the complexity of the hemostatic system, discusses new treatments for hemophilia, and explores both the clotting and r…

1
Introducing ASK THE EXPERT: Hemophilia, On Balance 1:23

9M ago1:23

1:23

Ask the Expert is back with a twelve-episode deep dive into the evolving landscape of a groundbreaking new class of therapies in hemophilia treatment—rebalancing agents. Through expert insights and discussions, our new season, Hemophilia: On Balance, unpacks complex science to make it accessible and relevant to the hemophilia community. Episodes wi…

1
I'm Fine: Honesty & Lies 8:52

10M ago8:52

8:52

On this special pop-up episode of the Bloodstream podcast, we're back with another 'I'm Fine' segment, which delves into the complexities of honesty and mental health. This episode features insights from Gabi Flores on the importance of addressing mental and emotional wellbeing, particularly for those managing chronic conditions. I'm Fine is presen…

1
NBDF CEO Phil Gattone + Dr. Nathan Connell on ASH Highlights 1:07:09

10M ago1:07:09

1:07:09

Patrick chats with NBDF CEO, Phil Gattone, after his first Washington Days! Plus, Dr. Nathan Connell gives a terrific ASH Recap full of the latest research and development in bleeding disorders and Amy speaks with FLOW co-host, Jessica Richmond about women with bleeding disorders. Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn mor…

1
I'm Fine: The First Fracture 9:40

10M ago9:40

9:40

On this episode we explore the concept of projecting a façade of being 'fine' while struggling internally, especially within the hemophilia community. Featuring insights from Austin Lerner, the episode delves into the importance of expressing vulnerability, embracing un-fine moments, and fostering open communication to truly address one's challenge…

1
Happy Rare Disease Day! 38:13

10M ago38:13

38:13

We celebrate Rare Disease Day because we love our Rares! Also, folks from WHF join us to share their comprehensive summit and the gene therapy segment is back with a new host and Dr. Mark Kay and genetic counselor, Kaylee Dollerschell. Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. Show Notes: Subscribe: The BloodStream Podc…

1
The wisdom of advocate Corbin Whittington 41:53

11M ago41:53

41:53

We've got distinguished patient advocate Corbin Whittington on the show. Corbin lives with chronic inflammatory demyelinating polyneuropathy (CIDP) and is an executive coach and chair for numerous Boards. He's an incredible leader in the rare disease community and we're excited to have him on BloodStream! We'll also hear from Wes Michael from Rare …

1
Dr. Ben Samelson-Jones on Gene Therapy 33:02

11M ago33:02

33:02

Dr. Ben Samelson-Jones is on the show highlighting the advances of Gene Therapy in Hemophilia B and we'll also share an exciting staffing update for Star Therapeutics, a biotech with an encouraging vWD pipeline. We'll tell ya all about it! Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. Show Notes: Subscribe: The BloodStream …

1
Behind the Mystery: Rare and Genetic Diseases 35:04

12M ago35:04

35:04

Behind the Mystery is the only television series featuring rare, genetic diseases, and we have creators and producers Carri Levy and Molly Mager, to tell us all about it and how to watch. Also, from the Living with Hemophilia blog, Philippines residents Cza and Jared share their story about living with severe hemophilia B. All this and more! Presen…

1
Max Feinsten talks elbow surgery 34:29

1y ago34:29

34:29

Patrick and Amy reflect on their favorite moments of the BloodStream year, plus Max Feinsten is getting surgery and we get to hear about it. And then, another I'm Fine segment with Michael Bishop. Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. Show Notes: Subscribe: The BloodStream Podcast I'm Fine is presented by @SanofiUS …

1
Jonathan Cappiello is 1 out of 20 47:20

1y ago47:20

47:20

Patrick sits down with Jonathan Cappiello, an ultra-rare who hosts the podcast, 1 out of 20 (who also has a connection to Ryan White!). Plus, our final Gene Therapy segment of the year and those WHF USA announcements. All that and more on BloodStream! Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. Show Notes: Subscribe: The …

1
Voices for Policy Change + 2025 HFA Preview with CEO Dan Kelsey 43:54

1y ago43:54

43:54

We've got HFA CEO Dan Kelsey on the show to give a 2025 preview for the organization. NBDF and Believe Limited have partnered on a new digital advocacy storytelling project, called Voices for Policy Change and we'll tell you all about it! Plus, the new season of Stop the Bleeding! And the I'm Fine segment with Michael Bishop. Presenting Sponsor: Ta…