Best BloodStream Media Podcasts (2025)

1
Navigating IBS: Insights from Patient Advocates and Clinicians 43:52

3d ago43:52

43:52

On this episode of, gastroenterologist Dr. Andrea Shin and Senior Director of Patient Advocacy at Ardelyx, Joanna Ruddy host Jeff Roberts and Erica Dermer to discuss their journey and impact in the IBS patient advocacy space. They cover the importance of evidence-based information, the psychosocial aspect of IBS, and the efforts to improve patient-…

1
Hemostasis and Current Treatments 16:21

4d ago16:21

16:21

In this episode, Amy trades medical jargon for construction metaphors as she takes us on a journey through hemostasis, the body’s natural way of stopping a bleed. But what happens when the repair crew is understaffed—or missing entirely? That’s where factor replacement therapy comes in. Amy and our experts explain how it works, why timing matters, …

1
NBDF CEO weighs in on current events 54:26

8d ago54:26

54:26

NBDF CEO, Phil Gattone, is back on the show to share his thoughts on the current events happening in our bleeding disorder community. Plus, Hanna speaks with Stanford law professor Dr. Hank Greely and legendary hematologist Dr. Margaret Ragni about how we know when gene therapy is the right choice—and is our system ready to support it? And, an inte…

1
A Legacy of Hope: The Cooley's Anemia Foundation Journey 43:38

10d ago43:38

43:38

On this episode NinaMaria talks with influential leaders of the Cooley's Anemia Foundation (CAF). Guests Bob Ficarra, Craig Butler, and Ralph Colasanti discuss the foundation's 70-year history, advocacy efforts, and pivotal role in advancing research and patient care for thalassemia. The conversation also emphasizes the significance of patient invo…

1
Sickle Cell Advocacy: Stories, Struggles, and Self-Care 37:45

17d ago37:45

37:45

On this episode of Cheat Codes, guest host Janie Davis, Director of Patient Advocacy at Agios Pharmaceuticals, is joined by sickle cell advocates Teonna Woolford, Cassandra Trimnell, and Rae Blaylark discuss the challenges and rewards of sickle cell advocacy. They delve into personal journeys, the nuances of advocacy, and the importance of self-car…

1
Medicaid Cuts and vWD Clinical Trials 1:08:14

22d ago1:08:14

1:08:14

Potential Medicaid cuts are looming that could affect our community. Hear how you can take action! We also have exciting news about a clinical trial for von Willebrand’s disease and a special community story from Kayla Klein and her mother, Nancy Rodgers. Plus, Patrick has some fantastic updates from the WFH’s Comprehensive Care Summit in Dubai. Pr…

1
Managing Polycythemia Vera for the Long Term 18:53

28d ago18:53

18:53

On this episode of the PV Pod, hosts Josh and Kay engage in a detailed discussion with Dr. Solly Chedid about managing polycythemia vera (PV) over the long term. They explore symptoms, diagnosis, and treatment options for PV, highlighting the importance of patient-doctor collaboration in crafting effective management plans. Don't miss this insightf…

1
Understanding the PKD Life Stage Model 25:47

1M ago25:47

25:47

On this episode, guest host Janie Davis, Director of Patient Advocacy at Agios Pharmaceuticals, discusses the Life Stage Model initiative with patient advocacy leaders, Tamara Scriver and Alejandra Watson. They delve into the work of the PKD Advocacy Advisory Council (AAC) and how it addresses the unmet needs of the community. The conversation high…

1
Pump the Brakes! – How Anti-Coagulation Works 15:49

1M ago15:49

15:49

On this exciting episode of Ask the Expert, join Amy as we delve into the fascinating world of blood clotting and anticoagulant therapy. We'll explore the clotting process with fun and relatable party analogies, featuring expert insights from Dr. Ben and Dr. Patrick. Discover how vital components like Protein C, Protein S, antithrombin, and TFPI wo…

1
New Music from Trevor Martin and info about Deliver Us, an upcoming documentary 1:24:28

1M ago1:24:28

1:24:28

One of our most stacked episodes in a while, featuring a chat and new music with Blood Brother, Trevor Martin. We also have Dr. Richard Lemon on the latest Gene therapy segment discussing the implications of recent hemophilia B gene therapy data. Plus, Allegra Hill and Kimberly Durdin from the only Black-owned birthing center in LA, and the visiona…

1
Cultural Stigmas and Unity in the Thalassemia Community 41:26

1M ago41:26

41:26

On this episode of Thal Pals: The Alpha Beta Revolution, patient advocate NinaMaria discusses the cultural stigmas surrounding thalassemia with three guests, Ralph Colasanti, Radhika Sawh, and Erick Phyakeo. Each shares their personal experiences with the condition and the cultural barriers they have faced and overcome. The conversation highlights …

1
Cultural Nuances in IBS-C Management: A Conversation with Dr. Rosie Frazier 40:47

1M ago40:47

40:47

On this episode, Dr. Andrea Shin and Johannah Ruddy discuss the importance of cultural competence in managing Irritable Bowel Syndrome with guest Dr. Rosie Frazier from Mayo Clinic. They explore how cultural backgrounds influence symptom communication, dietary practices, and shared decision-making in patient care. At Ardelyx®, we are dedicated to i…

1
Legends of Sickle Cell Disease: Dr. Isaac Odame’s Journey 45:44

2M ago45:44

45:44

On this episode, Dr. Z and Dr. C. Callahan interview Dr. Isaac Odame, a leading figure in the field of sickle cell disease. Dr. Odame shares his life story, beginning in Ghana, his medical training in the UK, and his global contributions to sickle cell research, including involvement with the Global Sickle Cell Disease Network. The discussion cover…

1
Shakeup at CDC - What does it mean??? 40:58

2M ago40:58

40:58

On April 1st, the Administration announced drastic changes and reductions to the federal health programs, one being the Division of Blood Disorders CDC, greatly affecting the bleeding disorders community. To discuss these concerns, we welcome a familiar face to many of you - Johanna Gray, federal policy advisor to NBDF and all-around wonderful huma…

1
The Big Three – Factor 8 + Factor 9 = Thrombin 19:29

2M ago19:29

19:29

Dive into the crucial roles of Factor VIII, Factor IX, and thrombin in the blood clotting process. Hosts Amy and Patrick introduce expert Dr. Benjamin J. Samelson-Jones to discuss the interplay between these factors, including how they activate each other and form clots. Featuring insights from Dr. Mark Reding on the myriad functions of thrombin, t…

1
Striking the Right Balance – Why Does it Matter in Hemophilia Treatment? 13:16

2M ago13:16

13:16

This episode of "Ask the Expert" titled "Striking the Right Balance – Why Does it Matter in Hemophilia Treatment?" delves into the concept of rebalancing in hemophilia treatment. Hosted by Amy Bord, the episode features expert insights from Dr. Ben Samuelson Jones, Dr. Patrick Ellsworth, and Dr. Mark Redding. They explain how hemophilia treatments …

1
I’m Fine: The Devil You Know 29:19

2M ago29:19

29:19

In this special pop-up episode of the Bloodstream Podcast, host Patrick James Lynch discusses the discontinuation of two Takeda bleeding disorder products with Anthea Cherednichenko, Takeda's VP Franchise Head Hematology and Transplant. Additionally, the 'I'm Fine' segment, sponsored by Sanofi, explores why people cling to the notion of being 'fine…

1
Dana's PV Journey: Research, Resilience & Mental Health 22:21

2M ago22:21

22:21

On the Season 2 premiere of the PV Pod: Stories from the Marrow, hosts Kay Vermeil and Josh Bragg introduce Dana, a therapist diagnosed with polycythemia vera (PV) at 35. Dana shares her unique diagnosis story, her experience managing PV symptoms from a young age, and the importance of self-advocacy, mental health, and community support in her jour…

1
HFA CEO Dan Kelsey & Gene Therapy w Brendan Hayes 37:59

2M ago37:59

37:59

HFA Symposium is this weekend, and we have CEO Dan Kelsey on the podcast to tell us all about it! Plus, a gene therapy segment with the fantastic Brendan Hayes about what she’s hearing in the community about gene therapy for hemophilia B. Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. Show Notes: Subscribe: The BloodStream P…

1
How Does Your Blood Clot?–The Clotting Cascade Explained 17:32

2M ago17:32

17:32

In this episode of 'Ask the Expert,' host Amy Board dives into the clotting cascade and explains how our blood clots. Alongside experts Dr. Ben Samuelson Jones, Dr. Amy Dunn, Dr. Mark Redding, and Dr. Patrick Ellsworth, Amy unpacks the complexity of the hemostatic system, discusses new treatments for hemophilia, and explores both the clotting and r…

1
Introducing ASK THE EXPERT: Hemophilia, On Balance 1:23

2M ago1:23

1:23

Ask the Expert is back with a twelve-episode deep dive into the evolving landscape of a groundbreaking new class of therapies in hemophilia treatment—rebalancing agents. Through expert insights and discussions, our new season, Hemophilia: On Balance, unpacks complex science to make it accessible and relevant to the hemophilia community. Episodes wi…

1
Championing Sickle Cell Care: A Talk with Dr. Wally Smith 44:55

2M ago44:55

44:55

Drs. Z and C welcome Dr. Wally Smith, a leading figure in sickle cell research from Virginia Commonwealth University, to discuss crucial issues affecting adults with sickle cell disease. They explore the neglect of adult patients, the need for dedicated centers, and the value of community health workers. Dr. Smith emphasizes the importance of holis…

1
I'm Fine: Honesty & Lies 8:52

2M ago8:52

8:52

On this special pop-up episode of the Bloodstream podcast, we’re back with another 'I'm Fine' segment, which delves into the complexities of honesty and mental health. This episode features insights from Gabi Flores on the importance of addressing mental and emotional wellbeing, particularly for those managing chronic conditions. I’m Fine is presen…

1
Life with Thalassemia: A Mother's Story 32:53

2M ago32:53

32:53

On this episode of Thal Pals, host NinaMaria talks with Maria Saradpan about her experiences as a caregiver to her daughter Camila, who has thalassemia. Maria shares her journey from initial fear and isolation to finding a supportive community and growing relationships with fellow caregivers and patients. The importance of a strong caregiver networ…

1
NBDF CEO Phil Gattone + Dr. Nathan Connell on ASH Highlights 1:07:09

3M ago1:07:09

1:07:09

Patrick chats with NBDF CEO, Phil Gattone, after his first Washington Days! Plus, Dr. Nathan Connell gives a terrific ASH Recap full of the latest research and development in bleeding disorders and Amy speaks with FLOW co-host, Jessica Richmond about women with bleeding disorders. Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn mor…

1
I'm Fine: The First Fracture 9:40

3M ago9:40

9:40

On this episode we explore the concept of projecting a façade of being 'fine' while struggling internally, especially within the hemophilia community. Featuring insights from Austin Lerner, the episode delves into the importance of expressing vulnerability, embracing un-fine moments, and fostering open communication to truly address one's challenge…

1
Happy Rare Disease Day! 38:13

3M ago38:13

38:13

We celebrate Rare Disease Day because we love our Rares! Also, folks from WHF join us to share their comprehensive summit and the gene therapy segment is back with a new host and Dr. Mark Kay and genetic counselor, Kaylee Dollerschell. Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. Show Notes: Subscribe: The BloodStream Podc…

1
Timmerman Hike: A Journey of Hope and Advocacy for Sickle Cell 45:56

3M ago45:56

45:56

On this inspiring episode of Cheat Codes, Dr. Z and Dr. C talk with an extraordinary group of individuals who embarked on a monumental climb up Mount Kilimanjaro to raise awareness and funds for sickle cell disease. Led by Dr. Alan Anderson and featuring sickle cell warrior Jimi Olaghere the group of Patrick Hines, MD, PhD, Eva Gallagher, PhD, and …

1
Mentors and Milestones: Inspiring the Next Generation of Hematologists 34:58

3M ago34:58

34:58

Join NinaMaria and Dr. Kuo in conversation with guests Dr. Priya Chandrakumaran and Dr. Hayoung Roh, hematology residents, as they share their journeys and passion for hematology. They discuss their motivations, the importance of patient-centered care, and experiences with thalassemia patients. Their insights highlight the value of mentorship and p…

1
Sex, Gender and Stigma in IBSC 46:51

3M ago46:51

46:51

On this episode of Gut Matters, we’re in conversation with Dr. Kyle Staller, a gastroenterologist at Mass General and Harvard Medical School. They delve into the impact of hormones, chronic stress, and trauma on IBS symptoms, particularly in female patients. The conversation also addresses the role of stigma in healthcare and the importance of effe…

1
Grounded with Purpose: Ken Stein's Journey with PV 21:15

3M ago21:15

21:15

On the final episode of Season 1 of The PV Pod, we’re in conversation with Ken Stein, a 77-year-old former pilot diagnosed with polycythemia vera (PV). Ken shares his diagnosis story, the impact of PV on his life, and the importance of community and self-advocacy. He also highlights challenges in communicating the severity of his condition to other…

1
The wisdom of advocate Corbin Whittington 41:53

4M ago41:53

41:53

We’ve got distinguished patient advocate Corbin Whittington on the show. Corbin lives with chronic inflammatory demyelinating polyneuropathy (CIDP) and is an executive coach and chair for numerous Boards. He’s an incredible leader in the rare disease community and we’re excited to have him on BloodStream! We’ll also hear from Wes Michael from Rare …

1
Building the Perfect Thalassemia Care Team: Insights from Dr. Sujit Sheth 28:50

4M ago28:50

28:50

On this episode of Thal Pals, NinaMaria interviews Dr. Sujit Sheth, a renowned red cell doctor specializing in thalassemia and other red cell disorders. Dr. Sheth emphasizes the importance of assembling a dedicated care team, advocates for patient self-advocacy, and provides valuable insights into individualized patient care. He also discusses the …

1
Dr. Ben Samelson-Jones on Gene Therapy 33:02

4M ago33:02

33:02

Dr. Ben Samelson-Jones is on the show highlighting the advances of Gene Therapy in Hemophilia B and we’ll also share an exciting staffing update for Star Therapeutics, a biotech with an encouraging vWD pipeline. We’ll tell ya all about it! Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. Show Notes: Subscribe: The BloodStream …

1
Kickstarting Gut Health in the New Year with Kate Scarlata 36:49

4M ago36:49

36:49

On this episode of Gut Matters, Johanna Ruddy and Dr. Andrea Shin kick off the New Year by discussing New Year's resolutions, dietary strategies for managing IBS-C, and featuring special guest Kate Scarlata, a Boston-based GI dietitian. The conversation covers the low FODMAP diet, the importance of dietary diversity, the role of fiber, and tips for…

1
PKD Conference 29:51

5M ago29:51

29:51

On this episode of Just Listen: Voices of PK Deficiency, guest host Janie Davis (Director, Patient Advocacy at Agios) is joined by special guests Tamara Schryver, Jill Welle, and Alejandra Watson to discuss the impact and organization of the second international PKD Conference. They share their experiences, the importance of international collabora…

1
A Year in Review for Polycythemia Vera 21:12

5M ago21:12

21:12

On this episode, Josh and Kay recap the first year of 'The PV Pod: Stories from the Marrow', reflecting on key moments from their ten episodes. They discuss polycythemia vera (PV), including insights from medical experts like Dr. Bose, Dr. Tremblay, and Dr. Gerds, and heartwarming stories from people living with PV, such as Nick Napolitano and Gary…

1
Behind the Mystery: Rare and Genetic Diseases 35:04

5M ago35:04

35:04

Behind the Mystery is the only television series featuring rare, genetic diseases, and we have creators and producers Carri Levy and Molly Mager, to tell us all about it and how to watch. Also, from the Living with Hemophilia blog, Philippines residents Cza and Jared share their story about living with severe hemophilia B. All this and more! Presen…

1
Max Feinsten talks elbow surgery 34:29

5M ago34:29

34:29

Patrick and Amy reflect on their favorite moments of the BloodStream year, plus Max Feinsten is getting surgery and we get to hear about it. And then, another I’m Fine segment with Michael Bishop. Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. Show Notes: Subscribe: The BloodStream Podcast I’m Fine is presented by @SanofiUS …

1
Unlocking Nutrition Secrets for Hemolytic Anemias - Part 2 22:55

5M ago22:55

22:55

On this episode of Thal Pals, NinaMaria concludes our two-part series on nutrition with guest Tamara Schryver, a nutrition scientist and president of the Thrive with Pyruvate Kinase Deficiency Organization. They dive into the roles of antioxidants for those with hemolytic anemias, the controversial debate over vitamin A and E supplements, and the s…

1
IBS-C and the Brain-Gut Axis: How holiday stress can impact symptoms 30:50

6M ago30:50

30:50

On this episode of the Gut Matters podcast, we discuss the impact of the brain-gut axis on IBS symptoms, particularly during the holiday season. The conversation includes practical advice on managing stress-induced gut issues, dietary challenges, and social pressures, with techniques like mindfulness and diaphragmatic breathing. Emphasis is placed …

1
Jonathan Cappiello is 1 out of 20 47:20

6M ago47:20

47:20

Patrick sits down with Jonathan Cappiello, an ultra-rare who hosts the podcast, 1 out of 20 (who also has a connection to Ryan White!). Plus, our final Gene Therapy segment of the year and those WHF USA announcements. All that and more on BloodStream! Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. Show Notes: Subscribe: The …

1
Behind the Words: Polycythemia Vera Definitions 24:34

6M ago24:34

24:34

On this episode of PV Pod: Stories from the Marrow, we welcome special guest Dr. Brandi Reeves. She helps us dive into an encyclopedic exploration of polycythemia vera (PV). They break down complex medical terms and concepts related to PV, including JAK2 mutations, allele burdens, molecular response, and more. Dr. Reeves provides clear and concise …

1
Voices for Policy Change + 2025 HFA Preview with CEO Dan Kelsey 43:54

6M ago43:54

43:54

We’ve got HFA CEO Dan Kelsey on the show to give a 2025 preview for the organization. NBDF and Believe Limited have partnered on a new digital advocacy storytelling project, called Voices for Policy Change and we’ll tell you all about it! Plus, the new season of Stop the Bleeding! And the I’m Fine segment with Michael Bishop. Presenting Sponsor: Ta…

1
IBS-C and the Patient’s Voice: Karen’s Story 40:07

6M ago40:07

40:07

On this episode of Gut Matters, hosts Dr. Andrea Shin and Johanna Ruddy, Director of Patient Advocacy at Ardelyx are joined by Karen Salem, an IBS patient advocate, who shares her journey with Irritable Bowel Syndrome. Karen talks about the challenges and misdiagnoses she faced over a 10-year period before finding the right medical support, which i…

1
Navigating Nutrition for Hemolytic Anemias - Part 1 27:06

7M ago27:06

27:06

On this episode of Thal Pals, NinaMaria hosts Tamara Schryver, president of the Thrive with Pyruvate Kinase Deficiency Organization. They discuss the importance of nutrition for patients with hemolytic anemias such as thalassemia and PKD. Tamara offers practical dietary tips and emphasizes the significance of nutrient-dense foods and vitamins. Stay…

1
Gene Therapy Roundtable and Honoring Jess McLean (Page) 31:54

7M ago31:54

31:54

On the latest Gene Therapy segment, we host Blood Brothers Rick Starks, Colin Johnston, Bobby Wiseman for a roundtable discussion to hear their unique thoughts about the gene therapy landscape. We also honor Jess McClean (Page)’s life and her contribution to the bleeding disorder community. Presenting Sponsor: Takeda, visit bleedingdisorders.com to…

1
Optimizing Nutrition for PK Deficiency: A Patient & Dietitian's Perspective 37:49

7M ago37:49

37:49

his episode, Dr. Rachael Grace welcomes back Tamara Schryver, PhD, RD, President of Thrive with PK deficiency, to discuss the essential role of nutrition and physical activity for individuals with PK deficiency. They explore the importance of iron management, vitamin intake, and tailored dietary plans developed by registered dietitians. Dr. Schryve…

Podcasts Worth a Listen

BloodStream Media Podcasts

Podcasts Worth a Listen