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#37 - I Changed My Tastebuds, But I’m Still Me (ish)
Manage episode 520177894 series 3603349
This week’s caller has lived with death in the background for most of her life—first through migraines that began when she was six, and later through a brain tumor that went undiagnosed for more than twenty years. By the time doctors caught it, she had spent a full year in a migraine that never let up. Surgery changed everything: her mood lifted, her pain eased, and even her tastebuds shifted. But the possibility of recurrence remains, shaping how she moves through the world.
What unfolds from there is part philosophy, part physics, part Wonderland. She talks about Alice in Wonderland Syndrome—the surreal way migraines can distort scale, shape, and the edges of the body—and how that lived strangeness pushed her toward math, spacetime, Flatland, and the comfort of unanswerable questions. Instead of trying to solve the mystery of death, she leans into the idea that some things can’t be known from this side of the line.
We also talk about community, belonging, and the unexpected places spirituality can live. Her weekly gathering is a pagan group that meets—of all places—in a church basement, lighting candles, crafting together, playing D&D, and caring for one another in a way that feels more meaningful than dogma ever has. When strong emotions can trigger pain, moderation becomes a survival skill, but it doesn’t stop her from pursuing what she loves or finding wonder in the smallest things.
The conversation circles around identity, too—how a person can wake up from brain surgery wondering if they’re still themselves, how preferences shift but the core stays intact, and how tiny we are in the universe without being insignificant. Her philosophy lands with a simple truth: sometimes the experience is worth the migraine. Even skydiving, if she can make it happen.
Book Recommendation: Alice’s Adventures in Wonderland by Lewis Carroll
If you’d like to watch this conversation instead of just listening, you can find the video version on YouTube.
Link to the Instagram Giveaway. Entry ends 11/21/2025 at 11:59PM PST.
Stay Connected
✨ WWDT+: Early Episode Access
🌐 Website: whenwedietalks.com
📸 Instagram: @whenwedietalks
▶️ YouTube: When We Die Talks
🎵 TikTok: @whenwedietalks
📰 Substack: When We Die Talks
📚 Anonymous Book Recommendations
✉️ Email: [email protected]
Want to share your thoughts?
We want to hear from you! Call our voicemail at 971-328-0864 and tell us what you believe happens when we die. Your message might be featured in a future episode and could help inspire someone else on their journey. Or, if you're interested in having a full conversation, you can apply to be an anonymous caller at whenwedietalks.com.
Have feedback about the show? Questions? Suggestions? Feel free to send a text or email—we’re always open to hearing what’s working and what’s not.
Chapters
1. #37 - I Changed My Tastebuds, But I’m Still Me (ish) (00:00:00)
2. Sponsor: Nia Emberly (00:00:50)
3. The Call Begins (00:04:09)
4. Books, Alice, And Migraine Syndromes (00:06:10)
5. Absurdism, Humor, And Coping (00:09:45)
6. What Might Happen When We Die (00:12:15)
7. Living with Brain Cancer (00:15:36)
8. Spirituality, Religion, And Community (00:20:54)
9. Big Picture (00:26:43)
10. The Theory of Everybody (00:32:51)
11. What's One Experience? (00:35:19)
12. Voicemail (00:38:33)
47 episodes
Manage episode 520177894 series 3603349
This week’s caller has lived with death in the background for most of her life—first through migraines that began when she was six, and later through a brain tumor that went undiagnosed for more than twenty years. By the time doctors caught it, she had spent a full year in a migraine that never let up. Surgery changed everything: her mood lifted, her pain eased, and even her tastebuds shifted. But the possibility of recurrence remains, shaping how she moves through the world.
What unfolds from there is part philosophy, part physics, part Wonderland. She talks about Alice in Wonderland Syndrome—the surreal way migraines can distort scale, shape, and the edges of the body—and how that lived strangeness pushed her toward math, spacetime, Flatland, and the comfort of unanswerable questions. Instead of trying to solve the mystery of death, she leans into the idea that some things can’t be known from this side of the line.
We also talk about community, belonging, and the unexpected places spirituality can live. Her weekly gathering is a pagan group that meets—of all places—in a church basement, lighting candles, crafting together, playing D&D, and caring for one another in a way that feels more meaningful than dogma ever has. When strong emotions can trigger pain, moderation becomes a survival skill, but it doesn’t stop her from pursuing what she loves or finding wonder in the smallest things.
The conversation circles around identity, too—how a person can wake up from brain surgery wondering if they’re still themselves, how preferences shift but the core stays intact, and how tiny we are in the universe without being insignificant. Her philosophy lands with a simple truth: sometimes the experience is worth the migraine. Even skydiving, if she can make it happen.
Book Recommendation: Alice’s Adventures in Wonderland by Lewis Carroll
If you’d like to watch this conversation instead of just listening, you can find the video version on YouTube.
Link to the Instagram Giveaway. Entry ends 11/21/2025 at 11:59PM PST.
Stay Connected
✨ WWDT+: Early Episode Access
🌐 Website: whenwedietalks.com
📸 Instagram: @whenwedietalks
▶️ YouTube: When We Die Talks
🎵 TikTok: @whenwedietalks
📰 Substack: When We Die Talks
📚 Anonymous Book Recommendations
✉️ Email: [email protected]
Want to share your thoughts?
We want to hear from you! Call our voicemail at 971-328-0864 and tell us what you believe happens when we die. Your message might be featured in a future episode and could help inspire someone else on their journey. Or, if you're interested in having a full conversation, you can apply to be an anonymous caller at whenwedietalks.com.
Have feedback about the show? Questions? Suggestions? Feel free to send a text or email—we’re always open to hearing what’s working and what’s not.
Chapters
1. #37 - I Changed My Tastebuds, But I’m Still Me (ish) (00:00:00)
2. Sponsor: Nia Emberly (00:00:50)
3. The Call Begins (00:04:09)
4. Books, Alice, And Migraine Syndromes (00:06:10)
5. Absurdism, Humor, And Coping (00:09:45)
6. What Might Happen When We Die (00:12:15)
7. Living with Brain Cancer (00:15:36)
8. Spirituality, Religion, And Community (00:20:54)
9. Big Picture (00:26:43)
10. The Theory of Everybody (00:32:51)
11. What's One Experience? (00:35:19)
12. Voicemail (00:38:33)
47 episodes
All episodes
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