Search a title or topic

Over 20 million podcasts, powered by 

Player FM logo
Artwork

Content provided by The Dudes. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by The Dudes or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://podcastplayer.com/legal.
Player FM - Podcast App
Go offline with the Player FM app!

266 - Spreading the Word, Saving Lives: Key Insights from ACD

42:57
 
Share
 

Manage episode 470585438 series 2030599
Content provided by The Dudes. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by The Dudes or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://podcastplayer.com/legal.

This episode features an interview with Heidi Wallis, Executive Director of the Association for Creatine Deficiencies (ACD). Heidi discusses ACD’s efforts in advancing research, treatments, and newborn screening for creatine deficiency disorders. Heidi shares her personal journey as a mother of two children with creatine deficiencies, emphasizing the importance of early diagnosis and treatment. The conversation also explores the challenges and progress in securing newborn screening for these disorders, underscoring ACD’s mission to improve lives and ultimately find a cure.

Also in this episode:

  • Sean explains how the Nu Motion building in Sacramento is an accessibility nightmare.
  • Thank you notes: Andra Stratton, and Sean’s friend Hanan.

Links and Resources:


  continue reading

304 episodes

Artwork
iconShare
 
Manage episode 470585438 series 2030599
Content provided by The Dudes. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by The Dudes or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://podcastplayer.com/legal.

This episode features an interview with Heidi Wallis, Executive Director of the Association for Creatine Deficiencies (ACD). Heidi discusses ACD’s efforts in advancing research, treatments, and newborn screening for creatine deficiency disorders. Heidi shares her personal journey as a mother of two children with creatine deficiencies, emphasizing the importance of early diagnosis and treatment. The conversation also explores the challenges and progress in securing newborn screening for these disorders, underscoring ACD’s mission to improve lives and ultimately find a cure.

Also in this episode:

  • Sean explains how the Nu Motion building in Sacramento is an accessibility nightmare.
  • Thank you notes: Andra Stratton, and Sean’s friend Hanan.

Links and Resources:


  continue reading

304 episodes

All episodes

×
 
Loading …

Welcome to Player FM!

Player FM is scanning the web for high-quality podcasts for you to enjoy right now. It's the best podcast app and works on Android, iPhone, and the web. Signup to sync subscriptions across devices.

 

Listen to this show while you explore
Play