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Chris Reidy & Di Langdon: Raising a child with FASD in New Zealand

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Manage episode 505301527 series 3680706
Content provided by Ember. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Ember or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://podcastplayer.com/legal.

Chris Reidy and Di Langdon have spent 20 years advocating for their son with Fetal Alcohol Spectrum Disorder (FASD) - a journey that started with countless misdiagnoses and school refusals before finally getting answers at age 15. Their son's struggles with developmental delays, sensory processing issues, and social difficulties led to isolation, bullying, and eventually self-harm and addiction.

The FASD diagnosis was relief and revelation - suddenly everything made sense. They learned "brain-first parenting," shifting from behavioural approaches to understanding their son's unique neurobiology. But in New Zealand, FASD isn't recognised as a disability, meaning no funding or support despite it being a lifelong condition. Chris and Di have had to find training overseas, fight schools for accommodations, and navigate health systems where professionals lack FASD knowledge. Their message: listen to families living with FASD, recognise it as a disability, and provide the support these children need to reach their potential.

We'd love to hear from you. Send us a text here!

If you need support, here are helpful links, phone numbers and resources: https://ember.org.nz/resources/in-a-crisis/

  continue reading

12 episodes

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iconShare
 
Manage episode 505301527 series 3680706
Content provided by Ember. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Ember or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://podcastplayer.com/legal.

Chris Reidy and Di Langdon have spent 20 years advocating for their son with Fetal Alcohol Spectrum Disorder (FASD) - a journey that started with countless misdiagnoses and school refusals before finally getting answers at age 15. Their son's struggles with developmental delays, sensory processing issues, and social difficulties led to isolation, bullying, and eventually self-harm and addiction.

The FASD diagnosis was relief and revelation - suddenly everything made sense. They learned "brain-first parenting," shifting from behavioural approaches to understanding their son's unique neurobiology. But in New Zealand, FASD isn't recognised as a disability, meaning no funding or support despite it being a lifelong condition. Chris and Di have had to find training overseas, fight schools for accommodations, and navigate health systems where professionals lack FASD knowledge. Their message: listen to families living with FASD, recognise it as a disability, and provide the support these children need to reach their potential.

We'd love to hear from you. Send us a text here!

If you need support, here are helpful links, phone numbers and resources: https://ember.org.nz/resources/in-a-crisis/

  continue reading

12 episodes

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