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From Six Months to Tears of Joy | The Breakdown: PAH
Manage episode 507212594 series 1323209
When six months is the best a doctor can offer, hope feels like a cruel joke. In this Breakdown edition of Sickboy, we dig into Pulmonary Arterial Hypertension (PAH)—a rare disease that once meant certain death but now has science flipping the script.
Through narration and three candid interviews, this audio doc traces PAH’s path from despair to possibility. Jane shares what it’s like to have her lungs hijacked in her twenties. Dr. David Langleben, who built Canada’s first pulmonary hypertension clinic, walks us through decades of grim prognoses. And Jamie Myra of PHA Canada explains why delayed diagnosis is still PAH’s deadliest trick. But then comes the plot twist: a new therapy called Sotatercept, a treatment that doesn’t just slap a Band-Aid on symptoms but actually targets the root cause. For doctors who’ve watched patients run out of time, it’s nothing short of a game changer.
The Breakdown is a new addition to the Sickboy’s format! An audio documentary where we crack open one illness at a time and make sense of it with heart, humour, and the occasional “WTF.”
Shout out to PHA Canada! This first Breakdown proves that even in the heaviest stories, hope still gets the last word.
For more information on how you can help please visit https://www.phacanada.ca/
Follow Sickboy:
Instagram: https://www.instagram.com/sickboypodcast
Tiktok: https://www.tiktok.com/@sickboypodcast
Discord: https://discord.gg/expeUDN
923 episodes
Manage episode 507212594 series 1323209
When six months is the best a doctor can offer, hope feels like a cruel joke. In this Breakdown edition of Sickboy, we dig into Pulmonary Arterial Hypertension (PAH)—a rare disease that once meant certain death but now has science flipping the script.
Through narration and three candid interviews, this audio doc traces PAH’s path from despair to possibility. Jane shares what it’s like to have her lungs hijacked in her twenties. Dr. David Langleben, who built Canada’s first pulmonary hypertension clinic, walks us through decades of grim prognoses. And Jamie Myra of PHA Canada explains why delayed diagnosis is still PAH’s deadliest trick. But then comes the plot twist: a new therapy called Sotatercept, a treatment that doesn’t just slap a Band-Aid on symptoms but actually targets the root cause. For doctors who’ve watched patients run out of time, it’s nothing short of a game changer.
The Breakdown is a new addition to the Sickboy’s format! An audio documentary where we crack open one illness at a time and make sense of it with heart, humour, and the occasional “WTF.”
Shout out to PHA Canada! This first Breakdown proves that even in the heaviest stories, hope still gets the last word.
For more information on how you can help please visit https://www.phacanada.ca/
Follow Sickboy:
Instagram: https://www.instagram.com/sickboypodcast
Tiktok: https://www.tiktok.com/@sickboypodcast
Discord: https://discord.gg/expeUDN
923 episodes
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