Meltdowns, Sleep Struggles and Routine Changes in the Summer Holidays
Manage episode 501186136 series 3660914
In this week’s episode of The Autism Mums Podcast, we’re diving into the reality of summer holidays when your autistic child thrives on school routine. Natalie shares how her son, who has been doing brilliantly during term time, has found the transition to the long break unexpectedly tough - from meltdowns and aggressive behaviours to disrupted sleep during a melatonin break. We talk about pacing activities, managing sensory needs, and finding that fine balance between structure and rest.
Key Takeaways
How losing the school routine can trigger heightened anxiety and challenging behaviours and why this is so common for autistic children.
How disrupted sleep, including during a melatonin break, can ripple through the day and impact mood, patience, and coping ability.
How favourite activities and special interests like metal detecting, magnet fishing, and trampoline time can help regulate emotions.
Pacing social interaction and physical activity to avoid sensory overload or burnout during the holidays.
How visual tools like Google Maps and travel timers can reduce anxiety during car journeys and transitions.
Managing expectations around events and invitations from saying 'no' to busy festivals to choosing carefully between activities that may or may not be accessible.
How preparation can help make big days out go more smoothly.
Mentioned in This Episode
Connect with The Autism Mums
Website – https://theautismmums.com/
Follow us on Instagram https://www.instagram.com/theautismmums
Follow us on TikTok https://www.tiktok.com/@theautismmums
Follow us on Facebook https://www.facebook.com/theautismmums
Transcript
[00:00:00] Hello and welcome to
the Autism Mums podcast. I'm Victoria. And I'm Natalie. We are two sisters
raising autistic children who know the joy, the challenges, and the everyday
moments. This is a supportive space for honest conversations, practical tips,
shared strength and expert advice. Whether you are celebrating a win, surviving
a meltdown, or just trying to make it through the day, we are right here with
you.
Join us as we share the ups, the downs, and everything in
between parenting autistic children.
Victoria Bennion:
Today, we're talking about something that so many parents of autistic children
will understand, and that's why the summer holidays can feel like the hardest
part of the year. We're gonna talk about what's been going on in our homes this
summer, from unexpected meltdowns to sleep struggles, and the ripple effect of
losing that familiar school routine.
Victoria Bennion:
We'll be sharing our real life [00:01:00]
stories, the strategies that have helped, and the moments that have truly
tested us. If you are navigating the ups and downs of the school holidays, you
are absolutely not alone. We are right here in it with you.
Natalie Tealdi: One
thing that's come up for us is our son has been coping so well. During term
time, so well at school, absolutely loving school. He's been doing so well and
it's been quite surprising how tricky he's finding the holidays.
Natalie Tealdi: It's
always a time of year that he struggles with, but he's gone from being able to
cope quite well when he's stressed to. Not coping so well and we're seeing
aggressive behaviors again, which we haven't seen for months. So it is taken me
by surprise a little bit.
Victoria Bennion:
What's he reacting to? What do you think is causing him the problem?
Natalie Tealdi: It's
being out of his routine. He just wants to be at school all the time. He likes
it. , He just feels comfortable there. That's his routine. That's [00:02:00] what we do Monday to Friday, and because
we're out of that, it's upsetting for him.
Victoria Bennion:
What do the summers look like in terms of structure?
Natalie Tealdi: We
haven't got a lot of structure. It can vary because some days he needs a lot of
rest. In the mornings he can be quite tired. We're going through a melatonin
break at the moment, so sleep is becoming difficult. He's not going to sleep
till really late now because he hasn't got anything to help him.
Victoria Bennion: Can
you talk about why you're having a melatonin break while we're on that?
Natalie Tealdi: Yeah,
so that was recommended by his pediatrician because we were noticing it wasn't
having such an effect anymore, which isn't apparently your, body gets used to
it, so. You do need to take breaks now and again for, for it to become
effective again. So we were at that point where bedtime was taking a long time
anyway, so we needed to have the break really, but now they're taking even
longer.
Natalie Tealdi: So he
is not really going to bed until we go to bed, which [00:03:00]
is really quite late. So he's more tired.
Victoria Bennion:
There'll be a lot of parents in the same position as you. I mean, we will be in
a couple of weeks. With the melatonin break, it's the most natural time to try
to do that if it's something that your child takes regularly. And we are
definitely gonna be planning a melatonin break as well.
Victoria Bennion: But
I'm gonna wait until I'm having a week where I'm not working because. I'm still
needed usually to sit there till he goes to sleep and I can't work early. I
usually get up quite early to get my work done so that I can take the
afternoons or a lot of the afternoons with the children in the holidays.
Victoria Bennion: I
want it to be the week that I don't have to get up early if I take that stress
off. But as you say, it adds to their sleep deprivation.
Natalie Tealdi: Yeah.
Victoria Bennion: So
what kind of things have you been doing with your son?
Natalie Tealdi: We
have to sort of gauge it. We are doing his special interests. So he likes to
metal detect, he likes to see magnet fishing, he likes water sports, like
paddle boarding, [00:04:00] kayaking.
Natalie Tealdi: So we
are doing all those sorts of things, but we're having to really gauge what he
can cope with during the day. Sometimes it's one activity. Sometimes he wants
to be doing activities all day and all night. He's gone back to so. It used to
be a daily routine of having pillow fights. When he feels hyper, he likes to
have a pillow fight.
Natalie Tealdi: It
helps him to regulate and calm down. And we've gone back to that, which can be
quite exhausting for us as the parents 'cause he needs someone to do it with. ,
He's on the trampoline an awful lot again. That needs a lot of supervision
'cause his sister likes to go on with him, but sometimes it, he can get a bit
too overexcited.
Natalie Tealdi: So it
needs a lot of monitoring.
Victoria Bennion:
It's good that he's got those outlets.
Natalie Tealdi: Oh,
definitely. Yeah. I mean he's, it's nothing like it was two years ago, don't
get me wrong. But it's just, it's just that he was doing so well. I thought
actually generally he was coping. Quite well overall, but it, [00:05:00] it's the holidays that we struggle with.
And I've noticed also, so we do have play dates with friends, but I think the
age that we're getting to now is some of his friends go off for play dates
without their parents there.
Natalie Tealdi: A
play date with my son? Requires parents to be present I definitely have to be
there. So I think we're at that stage where perhaps we are not gonna be the
first choice because other parents have a bit more flexibility and a bit more
freedom. Now there
Natalie Tealdi: kids
are getting older.
Victoria Bennion:
Yeah, so they have maybe friends over and then they're working or doing other
things, whereas it's entertaining you. It's, it's their time I suppose. It gets
tricky, doesn't it?
Natalie Tealdi: Yeah.
Yeah, I think so.
Natalie Tealdi: We've
looked into activities before and he is booked on a couple, just two, I think
in August. But again, we have to be very careful with that because he will
refuse to go to them. We have to choose really [00:06:00]
carefully.
Natalie Tealdi: And
it could be we get to the day on the ones that I've booked and paid for, that
he can't cope and will not go. It's a gamble every time. So even though, you
know. You can find send related activities, it's not necessarily gonna be
something that we can attend.
Victoria Bennion: I
think that the holidays do bring challenges and we've had family down, which my
son is so pleased about. He really looks forward to seeing them. However,
yesterday for example, they've got two dogs. We've got a dog. They have a lot
of bark in. The dogs weren't so pleased to see each other and those noise
levels.
Victoria Bennion: He
went up to his room, his safe space after a short while 'cause the noise was
just too much for him. So it's a lot of juggling. And then like you, we need to
pace out that interaction, what's required. Luckily again, the family members
of very understanding, very accepting. So we just have to make sure that he has
a lot of downtime
Victoria Bennion:
without having to engage with people. And [00:07:00]
then, so for example, today we're going to meet up with them at three o'clock,
but he's had the morning to just relax from yesterday to recharge. Managing
those energy levels, I think is, is what I find. I have to allow enough time.
As I think I've said before, I can be very like, go, go, go.
Victoria Bennion:
We're gonna do this, we're gonna do this. And I have to build in the time. And
actually, it's been working quite well so far with managing those things. But
we avoid doing a lot of. Busy events, , things that that might be taking place.
So we've just adjusted.
Victoria Bennion: But
I think you make those adjustments naturally, don't you, as to what your child
can cope with. And we just. Don't do it. So one of the things we were talking
about was going to a festival that's on. , And that was an absolute hard no and
I knew it would be. I always like to give him the opportunity.
Victoria Bennion: ,
I'm quite proud of him for being able to say, no, he just wouldn't be able to
access it in any way, shape, or form.
Victoria Bennion: So
it's accepting that it looks different, but I think over [00:08:00] time you automatically filter those things
to an extent anyway, and know that they're not gonna work.
Natalie Tealdi: Yeah.
Yeah, that's right.
Victoria Bennion: I
do know that there are a lot of parents, , in your situation too, who are
definitely dealing with, real heightened emotions and more challenging
behaviors, and that's really hard.
Natalie Tealdi: Yeah,
and I think it's, it's just being mindful of, things like haircuts that, you
know, are often a, a little bit of a struggle. Now that we're in the summer
holidays and he's struggling, anyway, those things are gonna be more of a big
deal. So I'm now thinking through, well, what else have we got coming up that I
can take away?
Natalie Tealdi:
Because they can just wait those things.
Victoria Bennion:
Because sometimes you think, oh, we've got all this free time in the summer
holidays. We'll book the haircut, we'll go to the dentist. And all those things
are really challenging for our children. So whilst time-wise it might be,, a
good idea, it might not be if they're already really struggling, really [00:09:00] heightened.
Natalie Tealdi: Yeah,
that's right.
Victoria Bennion: I
was talking to one of my friends and I think that there can be that sense that
you are not doing a good job and that you're failing at this.
Victoria Bennion: And
that can't be overestimated, really. It can feel very upsetting if your child's
really struggling in the holidays and you don't know how to help. Because the
thing that would help a lot is this routine that's just, that's been taken
away. You've said before, but it would be good if there was an option where, I
don't know if you could continue.
Natalie Tealdi: I
know just like a reduced school or something that's just like a couple of hours
in the morning. So there's that summer holiday. Schedule so it can flip from a
school schedule to a summer holiday schedule. And it is something that I
thought, , is that something that I can implement myself?
Natalie Tealdi: But
I, I don't think anything would really satisfy that, rather, other than it
would have to look very similar to how his school looks.
Victoria Bennion: You
have managed a quite a successful trip to Pepper Pig world.
Natalie Tealdi: [00:10:00] Yes. So those sorts of days are always. A
bit nerve wracking 'cause you think, oh, are they gonna go well or are they
not? But we put in as much preparation as we possibly could. This was a day
planned for our daughter's birthday, so we had been planning it for a while and
my son was aware of the plans and actually he was quite excited about it.
Natalie Tealdi: We
showed him some of the rides he had been before, so he had some memories of
going there about five years ago and. We did all the usual stuff, packed all
the fidget toys and plenty of snacks and all of that we're, we have a blue
badge, so that was really handy. We were able to park really close to the
entrance , so,, at the end of the day when we come back, you don't have a big
long walk to the car, so that's a bonus.
Natalie Tealdi: But
actually it went really well. He absolutely loved it. They both did, but we
were there the whole day and I, I really didn't think they were gonna last that
long. And I was. [00:11:00] You know, prepared
to be going home early. But no, we were there when it opened until it closed.
But then the shock came when we got in the car 'cause it did not cope in the
car at all.
Natalie Tealdi: We
had aggressive behaviors in the car on the way home. There was a lot of trying
to manage that. I did have all the distraction techniques I usually have in, in
the bag, but they weren't working unfortunately. But we did get through it.
Luckily we don't live too far away.
Victoria Bennion: How
did you get through it? Does he just eventually calm down?
Natalie Tealdi: Yeah.
So snacks, iPad, he got cross with the iPad though., We put an audiobook on. I
think that was the thing that actually was the distraction in the end was the
audiobook.
Victoria Bennion:
what do you think had been the trigger? Was it leaving the park? Was it the
transition?
Natalie Tealdi: I
think it was the transition from having such a good time at the park and now
we're going home and he doesn't like sitting in the car and it was gonna be,
you [00:12:00] know, an hour, just over an
hour. It's that boredom. He just instantly wants to be home. Now it's done on
the way there. It's not so bad. 'cause you're looking forward to going, aren't
you?
Natalie Tealdi: But
on the way home. Yeah, we just wanna be home now.
Victoria Bennion:
Yeah, that makes sense. We all need those like beam me up, Scotty Badges.
Natalie Tealdi: Oh
yeah, that would be so good,
Natalie Tealdi: so on
the way Home snacks were a good one. And the audio book, I also put a timer on
my phone. So this is quite a new thing. So with Google Maps, I do the route
home so he can see the timer.
Natalie Tealdi: He'll
often ask me how long till we get home, how long till we get home. So now
instead of me trying to estimate it in my head, I can show him in real time and
that's helpful.
Victoria Bennion: We
always have the maps up too. Always. My son is always looking at them, to the
extent that he will say to me, you'll be quicker if you go left. And
Natalie Tealdi: Oh my
Natalie Tealdi:
goodness.
Victoria Bennion: the
maps work far better than me. And, oh, look, there's an accident coming up. [00:13:00] It's red there, it's orange there.
Victoria Bennion: But
that's really helpful visual tool. , My phone will connect in the car, so it's
just up there. It really helps manage that where he needs to know how long. And
it's right there, isn't it?
Natalie Tealdi: My
daughter quite enjoys it too. She thinks our address is the blue dot.
Victoria Bennion:
that that.
Natalie Tealdi: I
know. I didn't know what she was talking about. Mommy, we live at the blue dot.
What?
Victoria Bennion:
Brilliant.
Thanks so much for joining us for today's conversation. We hope that by opening
up about our challenges and wins, you've perhaps picked up an idea or two that
you might be able to try, however it's going. Remember, you're doing an
incredible...
35 episodes