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Chris Anselmo: The Accidental Muscular Dystrophy Advocate

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Manage episode 322867167 series 2702939
Content provided by Matthew Zachary and Matthew Zachary Worldwide. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Matthew Zachary and Matthew Zachary Worldwide or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://podcastplayer.com/legal.

Chris Anselmo is the Director of Market Intelligence at the Muscular Dystrophy Association but he never envisioned becoming an advocate for a disease he never thought he'd get. After a car crash found him in the hospital on the receiving end of a random diagnosis of having extremely high creatine kinase levels, he was soon after diagnosed with Dysferlinopathy, specifically, Limb-Girdle muscular dystrophy, a rare muscle-weakening disease. No one asks to get sick but he went beast mode as a prolific blogger sharing his story and documenting the very real issues he had facing isolation, depression, anxiety, and a desire to make a difference for others like him.

NORDpod is the official podcast of the National Organization for Rare Disorders. For more information, visit https://rarediseases.org.

See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

  continue reading

39 episodes

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iconShare
 
Manage episode 322867167 series 2702939
Content provided by Matthew Zachary and Matthew Zachary Worldwide. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Matthew Zachary and Matthew Zachary Worldwide or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://podcastplayer.com/legal.

Chris Anselmo is the Director of Market Intelligence at the Muscular Dystrophy Association but he never envisioned becoming an advocate for a disease he never thought he'd get. After a car crash found him in the hospital on the receiving end of a random diagnosis of having extremely high creatine kinase levels, he was soon after diagnosed with Dysferlinopathy, specifically, Limb-Girdle muscular dystrophy, a rare muscle-weakening disease. No one asks to get sick but he went beast mode as a prolific blogger sharing his story and documenting the very real issues he had facing isolation, depression, anxiety, and a desire to make a difference for others like him.

NORDpod is the official podcast of the National Organization for Rare Disorders. For more information, visit https://rarediseases.org.

See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

  continue reading

39 episodes

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