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5. Navigating the healthcare system
Manage episode 483722448 series 3666517
Content provided by The Aplastic Anaemia Trust, PNH Support, DC Action, Fanconi Hope, SDS UK, and CAN., The Aplastic Anaemia Trust, PNH Support, DC Action, Fanconi Hope, SDS UK, and CAN.. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by The Aplastic Anaemia Trust, PNH Support, DC Action, Fanconi Hope, SDS UK, and CAN., The Aplastic Anaemia Trust, PNH Support, DC Action, Fanconi Hope, SDS UK, and CAN. or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://podcastplayer.com/legal.
When conditions are rare, even healthcare professionals fail to recognise them. This episode discusses some of the struggles that people living with rare blood disorders can experience when trying to get medical care.
Conditions mentioned in this episode: Paroxysmal Nocturnal Haemoglobinuria, Fanconi Anaemia, Shwachman Diamond Syndrome
Further reading:
fanconihope.org
sdsuk.org
pnhuk.org
theaat.org.uk
super-rare.org
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