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4. How to find your tribe
Manage episode 483722449 series 3666517
Content provided by The Aplastic Anaemia Trust, PNH Support, DC Action, Fanconi Hope, SDS UK, and CAN., The Aplastic Anaemia Trust, PNH Support, DC Action, Fanconi Hope, SDS UK, and CAN.. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by The Aplastic Anaemia Trust, PNH Support, DC Action, Fanconi Hope, SDS UK, and CAN., The Aplastic Anaemia Trust, PNH Support, DC Action, Fanconi Hope, SDS UK, and CAN. or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://podcastplayer.com/legal.
Loneliness is rife among people living with rare blood disorders. But there’s a whole community of people out there who are willing to connect. How are people with similar conditions finding each other?
Conditions mentioned in this episode: Fanconi anemia, Aplastic Anaemia, Paroxysmal Nocturnal Haemoglobinuria
Further Reading:
super-rare.org
theaat.org.uk
pnhuk.org
fanconihope.org
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