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Ep70 Pulse 136: In Memory of Fausta, Give Kids a Chance Act, HERO Study Expansion, PWS Relationships Study

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Manage episode 523401025 series 3594946
Content provided by PWSA | USA. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by PWSA | USA or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://podcastplayer.com/legal.

The latest in PWSA | USA events and PWS news in research, family support, and advocacy.

24 Hour Crisis Line: 941-312-0400

In Loving Memory of Fausta Deterling, Co-Founder of PWSA | USA - Prader-Willi Syndrome Association | USA

Angel Drive

Angel Drive 2025 - Prader-Willi Syndrome Association | USA

Stacy’s Thank You Message

Hope in Action: Carol's Story

PWSA Memory

1997_Vol-XXII-N4-Sept-1997.pdf

Share your PWSA Memory: 50 Year Anniversary - Prader-Willi Syndrome Association | USA

Events | Fundraisers

Claus for a Cause Thank You Message

PWSA Fundraising Pages - Campaign

Spotlight on Hope

Spotlight on Hope: Sharon, Leora Saacks Share Loved One Andrea's Journey with PWS - Prader-Willi Syndrome Association | USA

Share Your Story - Prader-Willi Syndrome Association | USA

Podcast

Ep69: Joe Gill: Inclusion, Purpose, and the Little Things | PWS United

Advocacy

A Milestone for Hope: U.S. House Passes the Give Kids a Chance Act - Prader-Willi Syndrome Association | USA

Family Support

Reflections from PWSA | USA’s Visit to PANTHERx Rare Pharmacy - Prader-Willi Syndrome Association | USA

Adoption Spotlight for Santino, contact: [email protected] or 412-441-4484

Ask Nurse Lynn: Testosterone and Low LH - Prader-Willi Syndrome Association | USA

Submit your own non-emergency medical question: Ask Nurse Lynn - Prader-Willi Syndrome Association | USA

Research

HERO Study for Treatment of Hyperphagia in PWS

PWS-PARTICIPANTS-NEEDED.pdf Flyer for adult with PWS relationship study

Pre-screening Survey for adults with PWS for relationship study

New Research Study Seeks Caregiver Insights on Hyperphagia in PWS - Prader-Willi Syndrome Association | USA

Eligibility Screening for Hyperphagia study: survey.alphadetail.com/wix/5/p867000759655.aspx?refby=medp

Screening Questionnaire for the Study Titled: The Effects of a Caregiver-Implemented Power Card Strategy on Social Play Skills in Children with Prader-Willi Syndrome | QuestionPro Survey

Prader-Willi Syndrome Clinical Scholarship Announcement - Prader-Willi Syndrome Association | USA

Announcements/Resource Spotlight

Holiday Gift Ideas: Sensory Edition - Prader-Willi Syndrome Association | USA

Intro Music: https://www.bensound.com/ License certificate #2242442

  continue reading

72 episodes

Artwork
iconShare
 
Manage episode 523401025 series 3594946
Content provided by PWSA | USA. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by PWSA | USA or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://podcastplayer.com/legal.

The latest in PWSA | USA events and PWS news in research, family support, and advocacy.

24 Hour Crisis Line: 941-312-0400

In Loving Memory of Fausta Deterling, Co-Founder of PWSA | USA - Prader-Willi Syndrome Association | USA

Angel Drive

Angel Drive 2025 - Prader-Willi Syndrome Association | USA

Stacy’s Thank You Message

Hope in Action: Carol's Story

PWSA Memory

1997_Vol-XXII-N4-Sept-1997.pdf

Share your PWSA Memory: 50 Year Anniversary - Prader-Willi Syndrome Association | USA

Events | Fundraisers

Claus for a Cause Thank You Message

PWSA Fundraising Pages - Campaign

Spotlight on Hope

Spotlight on Hope: Sharon, Leora Saacks Share Loved One Andrea's Journey with PWS - Prader-Willi Syndrome Association | USA

Share Your Story - Prader-Willi Syndrome Association | USA

Podcast

Ep69: Joe Gill: Inclusion, Purpose, and the Little Things | PWS United

Advocacy

A Milestone for Hope: U.S. House Passes the Give Kids a Chance Act - Prader-Willi Syndrome Association | USA

Family Support

Reflections from PWSA | USA’s Visit to PANTHERx Rare Pharmacy - Prader-Willi Syndrome Association | USA

Adoption Spotlight for Santino, contact: [email protected] or 412-441-4484

Ask Nurse Lynn: Testosterone and Low LH - Prader-Willi Syndrome Association | USA

Submit your own non-emergency medical question: Ask Nurse Lynn - Prader-Willi Syndrome Association | USA

Research

HERO Study for Treatment of Hyperphagia in PWS

PWS-PARTICIPANTS-NEEDED.pdf Flyer for adult with PWS relationship study

Pre-screening Survey for adults with PWS for relationship study

New Research Study Seeks Caregiver Insights on Hyperphagia in PWS - Prader-Willi Syndrome Association | USA

Eligibility Screening for Hyperphagia study: survey.alphadetail.com/wix/5/p867000759655.aspx?refby=medp

Screening Questionnaire for the Study Titled: The Effects of a Caregiver-Implemented Power Card Strategy on Social Play Skills in Children with Prader-Willi Syndrome | QuestionPro Survey

Prader-Willi Syndrome Clinical Scholarship Announcement - Prader-Willi Syndrome Association | USA

Announcements/Resource Spotlight

Holiday Gift Ideas: Sensory Edition - Prader-Willi Syndrome Association | USA

Intro Music: https://www.bensound.com/ License certificate #2242442

  continue reading

72 episodes

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