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Ep69: Joe Gill: Inclusion, Purpose, and the Little Things

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Manage episode 522286427 series 3594946
Content provided by PWSA | USA. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by PWSA | USA or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://podcastplayer.com/legal.

Welcome to another episode in our podcast series, Sibling Advocacy, where we speak with siblings about how they show up for their loved one with PWS, whether at the kitchen table, at school, in friend groups or government, or any place where their sibling may need them.

Today's episode, hosted by Elaine Towle, PWSA | USA's Advocacy Specialist and mom to James, living with PWS, is with Joe Gill. Joe is the older brother of Gavin, an almost 20-year-old living with PWS. Joe talks about growing up with PWS in the house, what inclusion looks like for Gavin, the need for opportunities for adults, and offers some advice for other siblings on this journey. In 2022, as part of raising funds and awareness, Joe ran the Boston Marathon.

With a diagnosis as challenging as PWS can be, we hope families will find this episode, and this series, refreshing and insightful. Thank you to all the siblings advocating and showing up for their loved one with PWS!

Learn more about Prader-Willi syndrome and PWSA | USA at www.pwsausa.org

Intro Music: https://www.bensound.com/ License certificate #2242442

  continue reading

72 episodes

Artwork
iconShare
 
Manage episode 522286427 series 3594946
Content provided by PWSA | USA. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by PWSA | USA or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://podcastplayer.com/legal.

Welcome to another episode in our podcast series, Sibling Advocacy, where we speak with siblings about how they show up for their loved one with PWS, whether at the kitchen table, at school, in friend groups or government, or any place where their sibling may need them.

Today's episode, hosted by Elaine Towle, PWSA | USA's Advocacy Specialist and mom to James, living with PWS, is with Joe Gill. Joe is the older brother of Gavin, an almost 20-year-old living with PWS. Joe talks about growing up with PWS in the house, what inclusion looks like for Gavin, the need for opportunities for adults, and offers some advice for other siblings on this journey. In 2022, as part of raising funds and awareness, Joe ran the Boston Marathon.

With a diagnosis as challenging as PWS can be, we hope families will find this episode, and this series, refreshing and insightful. Thank you to all the siblings advocating and showing up for their loved one with PWS!

Learn more about Prader-Willi syndrome and PWSA | USA at www.pwsausa.org

Intro Music: https://www.bensound.com/ License certificate #2242442

  continue reading

72 episodes

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