Search a title or topic

Over 20 million podcasts, powered by 

Player FM logo
Artwork

Content provided by Kerly Bwoga. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Kerly Bwoga or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://podcastplayer.com/legal.
Player FM - Podcast App
Go offline with the Player FM app!

S3E4 Taya’s Tale: How IH Stole My Energy— But Not My Life

37:57
 
Share
 

Manage episode 483609550 series 3564242
Content provided by Kerly Bwoga. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Kerly Bwoga or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://podcastplayer.com/legal.

Leave a review!

In this episode of Narcolepsy Navigators, we meet the radiant and resilient Taya Austin, a federal employee, nonprofit leader, and auntie-turned-parent, living with Idiopathic Hypersomnia (IH).

After years of being dismissed, misdiagnosed, and told to “just sleep better,” Taya finally received her diagnosis two years ago. From childhood naps and overwhelming exhaustion in college, to hiding her symptoms while earning her master's and serving her community, her story is one of silent suffering turned self-advocacy.

Taya talks candidly about:

  • [06:12] How doctors ignored her fatigue for years
  • [13:17] The moment she refused to be dismissed again
  • [18:03] Learning boundaries and unlearning hustle culture
  • [21:02] How IH impacts dating, friendships, and self-worth
  • [30:01] Her experience with medication, including Xywav
  • [34:19] Why she'd hit the red button to erase IH

💡 Taya’s voice is powerful, full of laughter and light—and rooted in the truth that rest isn’t a luxury, it’s survival.

🎧 Listen now for a deeply relatable episode about learning to slow down, speak up, and take your life back—nap by nap.

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast

***If you find these symptoms relatable, please seek medical advice.***

  continue reading

Chapters

1. S3E4 Taya’s Tale: How IH Stole My Energy— But Not My Life (00:00:00)

2. How doctors ignored her fatigue for years (00:06:12)

3. The moment she refused to be dismissed again (00:13:17)

4. Learning boundaries and unlearning hustle culture (00:18:03)

5. How IH impacts dating, friendships, and self-worth (00:21:02)

6. Her experience with medication, including Xywav (00:30:01)

7. Why she'd hit the red button to erase IH (00:34:19)

39 episodes

Artwork
iconShare
 
Manage episode 483609550 series 3564242
Content provided by Kerly Bwoga. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Kerly Bwoga or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://podcastplayer.com/legal.

Leave a review!

In this episode of Narcolepsy Navigators, we meet the radiant and resilient Taya Austin, a federal employee, nonprofit leader, and auntie-turned-parent, living with Idiopathic Hypersomnia (IH).

After years of being dismissed, misdiagnosed, and told to “just sleep better,” Taya finally received her diagnosis two years ago. From childhood naps and overwhelming exhaustion in college, to hiding her symptoms while earning her master's and serving her community, her story is one of silent suffering turned self-advocacy.

Taya talks candidly about:

  • [06:12] How doctors ignored her fatigue for years
  • [13:17] The moment she refused to be dismissed again
  • [18:03] Learning boundaries and unlearning hustle culture
  • [21:02] How IH impacts dating, friendships, and self-worth
  • [30:01] Her experience with medication, including Xywav
  • [34:19] Why she'd hit the red button to erase IH

💡 Taya’s voice is powerful, full of laughter and light—and rooted in the truth that rest isn’t a luxury, it’s survival.

🎧 Listen now for a deeply relatable episode about learning to slow down, speak up, and take your life back—nap by nap.

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast

***If you find these symptoms relatable, please seek medical advice.***

  continue reading

Chapters

1. S3E4 Taya’s Tale: How IH Stole My Energy— But Not My Life (00:00:00)

2. How doctors ignored her fatigue for years (00:06:12)

3. The moment she refused to be dismissed again (00:13:17)

4. Learning boundaries and unlearning hustle culture (00:18:03)

5. How IH impacts dating, friendships, and self-worth (00:21:02)

6. Her experience with medication, including Xywav (00:30:01)

7. Why she'd hit the red button to erase IH (00:34:19)

39 episodes

All episodes

×
 
Loading …

Welcome to Player FM!

Player FM is scanning the web for high-quality podcasts for you to enjoy right now. It's the best podcast app and works on Android, iPhone, and the web. Signup to sync subscriptions across devices.

 

Copyright 2025 | Privacy Policy | Terms of Service | | Copyright
Listen to this show while you explore
Play