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This week on Narcolepsy Navigators, Kerly sits down with Fred to explore what it truly means to live with narcolepsy while navigating identity, stigma, and self-acceptance. Fred opens up about the diagnosis journey, the challenges of being misunderstood, and how to balance vulnerability with strength.

From redefining what “disabled” means to them personally, to highlighting the importance of visibility and representation, Fred’s story is a powerful reminder that life with narcolepsy is not defined by limitations—but by resilience, courage, and the choice to live authentically.

This episode is about breaking silence, reclaiming identity, and inspiring others in the sleep disorder community to embrace their truth. Whether you live with narcolepsy, support someone who does, or simply want to learn more, Fred’s voice will move you.

Chapters

• 00:00 Introduction & Meet Fred
• 05:20 Early Experiences with Narcolepsy
• 14:45 The Emotional Weight of Diagnosis
• 23:10 Identity, Stigma, and Representation
• 34:00 Finding Hope and Resilience
  

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***If you find these symptoms relatable, please seek medical advice.***