))
One Phone Call = Big Decisions
Manage episode 509238110 series 3642239
In this episode Colleen introduces Amy (from Queensland's Sunshine Coast) and their conversation takes a look at MS decision‑making and the courage to choose a path that fits your temperament. Amy also talks with Colleen about her diagnosis, cost shock, her experience of Mavenclad side effects, community wisdom, and the quiet power of taking control. If you’re weighing your choices or how to live with less fear and more clarity, Amy’s story offers practical insight into considerations around risk and recovery.
You can join Colleen and other Australians living with MS in this podcast's Facebook group which was originally created to support those interested in HSCT and now exists to facilitate discussion on all issues relevant to MS.
Multiple Sclerosis and HSCT Australia - Facebook group
PS: I'd appreciate your donation to help in maintaining this podcast - if you could buy me a coffee or two please (donate $5, it's not real coffee! thank you!) - Colleen
Buy Colleen a Coffee - thank you!
Disclaimer:
This podcast is not intended to replace professional medical advice.
The views expressed in episodes of this podcast are those of the host or guest(s) and are not intended to replace professional medical advice.
No story told, view expressed or opinion voiced, written or otherwise shared in any episode of this podcast is to be taken as medical advice, including when related in an episode as a professional opinion or professional advice given.
Always seek the guidance of your doctor or other qualified health professional with any questions regarding your health or medical condition.
Content Warning:
Multiple Sclerosis is an unpredictable condition and the conversations and stories in all episodes of this podcast will contain reference to MS symptoms as well as situa...
Chapters
1. Meet Amy: A sudden diagnosis (00:00:00)
2. Symptoms dismissed, answers delayed (00:03:20)
3. The phone call: “You have MS” (00:06:30)
4. First neuro visit and Mavenclad (00:09:20)
5. Side effects, costs, and doubt (00:13:00)
6. Discovering HSCT through chance (00:16:30)
7. “Not bad enough” and pushing back (00:20:10)
8. Choosing HSCT early (00:24:00)
9. Treatment experience in Russia (00:28:00)
10. New lesions and urgency (00:32:20)
11. Coming home: recovery and anxiety (00:35:10)
12. Symptom shifts and what’s improving (00:40:00)
13. Redefining follow‑up and scans (00:44:00)
14. Fear, fortitude, and identity (00:48:00)
15. Community, compassion, and carers (00:52:00)
29 episodes
Share
