I was invited to speak on the theme "expansion" at the event @Storiesthatstir, on the 24th February 2025. I know the lovely organiser, Monica, and I was honoured when she invited me to talk about our story.

This is the story of how becoming a special needs parent didn’t just expand our world—it catapulted us into a multiverse. One filled with fear, medical trauma, endless questions... but above all, with love.

I share our journey through rare disease diagnosis, NICU stays, open-heart surgery, and the terrifying uncertainties that come with Kabuki Syndrome. But I also share what gives me strength: a superhero metaphor that unexpectedly became my lifeline.

💚 If this story resonates, please share this podcast. You never know who might need to hear it today.

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📌 Follow our journey on socials: @mykabukigirl
🎥 Watch the video version on YouTube: https://youtu.be/xtA1BfNg9Cs or

Read the blog post: https://www.mykabukigirl.com/post/the-lantern-against-all-fears

#MyKabukiGirl #SpecialNeedsMama #SpecialNeedsParenting #KabukiSyndromeAwareness #GreenLantern #RareButReal #DisabilityParenting #MedicalMum #HeartWarriorMama #LoveIsMySuperpower #RealParentingMoments #RareDiseaseAwareness #storiesthatstir

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Stay safe, ciao! ☺️