Living with Crohn's Disease Doesn't Stop Ian Goldstein from Finding the Humor

Bowel Moments

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Comedian Ian Goldstein takes us through his journey with Crohn's disease, beginning with his diagnosis at 16 when he was just trying to navigate the already challenging world of high school, SATs, and planning for college. With candid humor, he recounts the moment he realized something was seriously wrong – not just from frequent bathroom trips, but when a coworker pointed out his dramatic weight loss.
What follows is a rollercoaster of medical experiences that many in the IBD community will recognize – from the shock of needing a colonoscopy as a teenager to the trial and error of finding effective medications. Ian vividly describes his first major bowel obstruction during his senior year of college, complete with what he calls the "modern-day torture device" known as an NG tube. Despite his best efforts to manage his condition through diet alone, he eventually required surgery in 2022 to remove seven strictures from his small intestine.
The conversation takes a fascinating turn when Ian shares how he's transformed his medical journey into comedy shows. From "The Autoimmune Saloon" to a celebration party for meeting his healthcare deductible (complete with custom cupcakes and hats), he's found ways to create community while addressing serious issues like medical debt. These creative outlets not only helped him process his experiences but connected him with others who could offer crucial advice about doctors and treatments.
Perhaps most valuable are Ian's insights about navigating the healthcare system with a chronic illness. He speaks honestly about the frustration of insurance denials, the anxiety of unexpected medical bills, and the challenges of having an invisible disability. His experiences highlight the importance of self-advocacy, finding the right medical team, and building a supportive community.
Ready to laugh, cry, and feel a little less alone in your IBD journey? Listen as Ian shares his practical wisdom: record your doctor appointments to remember important information, and seek out community connections that might literally change your life. Whether you're newly diagnosed or a veteran of chronic illness, this conversation reminds us all that finding humor in dark places might be our most powerful medicine.

Links:

Ian's website
New York Times article about Ian's party to celebrate meeting his healthcare deductible
The Squeaky Wheel- satire publication that focuses on the experiences of people living with disabilities.
Tina's episode with us
Dr. David Schwartzberg's episode with us
Nicole's episode with us- Ian mentioned Nicole and how supportive she's been to him but we sadly had to cut that part out for length. But- get to know Nicole!!

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Chapters

1. Welcome and Introduction (00:00:00)

2. Ian's Diagnosis Story at Age 16 (00:03:14)

3. Bowel Obstructions and Surgery Experiences (00:06:40)

4. SIBO and Dietary Challenges (00:13:50)

5. From IBD to Comedy Stage (00:23:52)

6. Medical Costs and Healthcare Frustrations (00:31:45)

7. Finding Hope and Community Connections (00:38:55)

8. Advice for the IBD Community (00:43:20)

147 episodes

#Fitness #Society #Medicine #Alicia Barron and Robin Kingham #Alicia Barron #Robin Kingham #Inflammatory Bowel Disease #Crohns #Ulcerative Colitis #IBD #Gastroenterology #Indeterminate Colitis