CFRI's CF Community Voices is a video podcast series created by and for the cystic fibrosis community.
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Living with cystic fibrosis: the challenges and triumphs along the way. Live-Breathe-Inspire
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The weekly teachings from the Sunday worship service of Christ Fellowship church of Elizabeth, NJ. At Christ Fellowship, we seek to love God, make disciples, and change the world.
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Our goal for this podcast is to strengthen our community by sharing our members' success stories.
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Relevant information on health, fitness and events for CF kindred members and our local community
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Cloud Foundry Weekly deep dives into various aspects of the Cloud Foundry ecosystem. Join Nick and Nicky as they interview special guests from the community and deep dive into special features within the VMware Tanzu and Cloud Foundry ecosystem.
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A dynamic Cystic Fibrosis Podcast, educating people on the different experiences and lives that CFers face. Discussing all sides of CF, including the fearful, the ambitious, the emotional and the challenging. A podcast that is purposely made to educate but more importantly comfort fellow CFers and support the CF community💛
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An original podcast that gets inside the heads of the Cystic Fibrosis Community to talk about all kinds of topics with respect and honesty.
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In technology, you need to modernize or die, and in this podcast, we take you behind the scenes in the ColdFusion community to talk with the leaders, to find out what they are doing to push the language forward, with tools, frameworks, modules, lessons and best practices.
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A body that looks and feels like YOU. A mind that’s clear & focused - ready for MASSIVE & CONSISTENT action. A life of fulfillment, passion, meaning & purpose. That’s what we are here to share with you. Join Katy Ferguson, M Ed., CF-L1, Pn1, CPT and Nathan Ferguson, MSW, LCSW as they help you create the life, the body and mind you want NOW. Together, with their blend of hilarity, stories, and more than a decade of service to the mind and body fitness community - they will help you stop opera ...
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Unique Transplant Journeys: Stories of Strength and Resilience (Video)
34:24
34:24
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34:24April is National Donate Life Month, a time to raise awareness about the importance of organ donation. In this podcast, adults with CF, Elyse Elconin-Goldberg, Missy Peterson, and Willem Wery, reflect on their experiences preparing for, undergoing, and recovering from double lung transplants. With unique journeys, Elyse, Missy, and Willem discuss t…
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70 years strong: The Luanne McKinnon story.
1:03:30
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1:03:30A 70-year-old person with cystic fibrosis. It’s a phrase that wasn’t just uncommon a few decades ago—it was virtually unheard of. When Luanne McKinnon was diagnosed in 1969 at just 13 years old, doctors told her parents she might live to be 19 years old. Today, Luanne stands on the edge of her 70th birthday—a milestone that not only redefines possi…
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Eight miles. Two friends. One cause. In this inspiring episode, Jacob Venditti opens up about his life with cystic fibrosis, offering candid updates on his health and the challenges he faces as he prepares for a lung transplant. He emphasizes the vital role of community support and shares how his work with the Live Fearlessly Foundation fuels his m…
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Unique Transplant Journeys: Stories of Strength and Resilience (Audio)
34:24
34:24
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34:24April is National Donate Life Month, a time to raise awareness about the importance of organ donation. In this podcast, adults with CF, Elyse Elconin-Goldberg, Missy Peterson, and Willem Wery, reflect on their experiences preparing for, undergoing, and recovering from double lung transplants. With unique journeys, Elyse, Missy, and Willem discuss t…
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From Bulky to Breakthrough: The Future of Airway Clearance
27:37
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27:37From Clunky to Cutting-Edge: The Evolution of Airway Clearance with Nicole Dunn When our daughters first received their vest machines, they felt like they weighed a hundred pounds and had to be plugged into the wall. The vests didn’t fit well—riding high in the armpits and leaving much to be desired in comfort and function. Fast forward 25 years, a…
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Is Cloud Foundry the Agentic AI Platform? : Cloud Foundry Weekly : Ep 53
1:03:07
1:03:07
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1:03:07Corby and Kirti return to show how Cloud Foundry is the enterprise's Agentic AI platform of choice! We will continue to explore the Model-Context Protocol (MCP), Spring AI, and GenAI on Tanzu Platform. Last but not least, we will provide some commentary on what can be achieved on CPUs vs. GPUs within the platform and what resources you may need to …
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Exploring Open WebUI MCP support & Debugging LLMs : Cloud Foundry Weekly: Ep 52
1:01:27
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1:01:27Let's take a test drive of the latest Open WebUI release (0.6.0), which introduces MCP support! We will dive deep into this and how to debug LLMs running on the Tanzu Platform. Don't miss the episode to as we will be showing tips and tricks for getting LLM function support, MCP, and one of the best GenAI frontends working on Cloud Foundry!…
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Milestones, Medicine, and the CF Community with Siri Vaeth
53:36
53:36
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53:36CFRI’s Executive Director, Siri Vaeth is sunshine to me. She’s a dear friend. We met after Siri took on her role with the Cystic Fibrosis Research Institute. I consider Siri a dear friend, and a mentor. Siri is truly among the smartest people I know. She is an advocate for her daughter Tess, who has CF, and is an incredible advocate for the CF comm…
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The Impacts of CF on Sinonasal Health & Olfactory Function — Jessa E. Miller, MD (Video)
35:08
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35:08In this podcast, Dr. Jessa E. Miller—Rhinology & Skull Base Surgery Fellow at UCLA—provides background on the anatomy and function of paranasal sinuses, and the impact that ineffective CFTR protein development has on a person with cystic fibrosis’s (CF) ability to properly rid the body’s respiratory system of mucus and trapped debris. Dr. Miller to…
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The Impacts of CF on Sinonasal Health & Olfactory Function — Jessa E. Miller, MD (audio)
35:08
35:08
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35:08In this podcast, Dr. Jessa E. Miller—Rhinology & Skull Base Surgery Fellow at UCLA—provides background on the anatomy and function of paranasal sinuses, and the impact that ineffective CFTR protein development has on a person with cystic fibrosis’s (CF) ability to properly rid the body’s respiratory system of mucus and trapped debris. Dr. Miller to…
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I ain't afraid of no CVEs! : Cloud Foundry Weekly: Episode 51
58:36
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58:36DMZ, Nishad, and Rajan will join the show this week to discuss how Team Tanzu proactively handles the ever-changing security landscape by implementing proactive practices to respond to and mitigate the CVE threat landscape. We will also ask the team for their thoughts on wrapping security around the Model Context Protocol(MCP) as it continues to pi…
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Continuous Platform Engineering with cf-kaizen : Cloud Foundry Weekly : Ep 50
1:02:18
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1:02:18We welcome special guests Chris Phillipson and Brian Kirkland to the show to discuss implementing continuous platform engineering with cf-kaizen and the rest of the cf-tool suite. Don't miss this episode to see how you can harness the power of agents to improve your overall platform operations and engineering.…
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I love that I was able to bump into Aaron Trumm via an email. He reached out to check in about our scholarship program for college. We only award grants to undergrad students, but I was intrigued by all I learned about him. Aaron has CF, he is post-transplant, he started a recording label, he plays the piano and wraps, And he worked with the man kn…
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In this podcast, Dr. Chelsea Lau, a Fellow Physician in Hematology and Oncology at Northwestern Memorial Hospital, explores the link between cystic fibrosis (CF) and various types of cancer. Dr. Lau provides insights into how cancer develops in the general population and highlights the unique cancer risks for people with CF as well as CF carriers. …
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In this podcast, Dr. Chelsea Lau, a Fellow Physician in Hematology and Oncology at Northwestern Memorial Hospital, explores the link between cystic fibrosis (CF) and various types of cancer. Dr. Lau provides insights into how cancer develops in the general population and highlights the unique cancer risks for people with CF as well as CF carriers. …
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ConcourseGPT - Taming the Beasts of CI/CD - Cloud Foundry Weekly : Episode 49
1:16:23
1:16:23
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1:16:23We will have special guest Joey McDonald on the show to discuss his latest project, ConcourseGPT! ConcourseGPT aims to tame the Beasts of CI/CD Infrastructure with AI-generated documentation! It solves the challenge of undocumented, complex Concourse pipelines with an AI-powered tool that generates comprehensive documentation for configurations tha…
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Bob Coughlin, CF Dad: from Congress to Science
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45:50CF Dad Bob Coughlin see's a cure in the future for his son, and all of our kids. His high energy in this podcast is contagious. In this conversation, Laura Bonnell and Bob Coughlin discuss the journey of Bob's son, Bobby, who has cystic fibrosis. They explore the advancements in treatment, the importance of advocacy, and the intersection of policy …
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Zero to Hero with Spring AI: Part Two - Cloud Foundry Weekly : Episode 48
1:05:37
1:05:37
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1:05:37We welcome Adib Saikali back to the show to continue covering his Zero to Hero class on Spring AI! We will also continue to show how easy it is to expand and empower Java developers on the platform using Spring AI to jumpstart intelligent app development using Cloud Foundry and our GenAI tile. Grab the code: https://github.com/asaikali/spring-ai-ze…
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"Turning a Hardened Heart to Gold" :: Carlos Cedeño
46:04
46:04
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46:04A hard heart is difficult to surrender to God. The Scriptures call us to soften our hearts and make them available to be molded and shaped by God, much like a potter shapes clay. Though the process can be difficult, in the end we will come out refined and looking the way God created us to be. This teaching is part of our March 2025 series, “The Ref…
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Installing Open-WebUI Part 2: Advanced Use Cases: Cloud Foundry Weekly: Episode 47
1:05:02
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1:05:02We continue our coverage on running Open-WebUI on Cloud Foundry! We will dig into what services we can tie in from the Cloud Foundry marketplace to expand our exploration of running GenAI apps and LLMs within your foundations. Last but not least, we will give a sneak peek at Nick's latest addition to his homelab.…
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Michael Armstrong is a 25-year-old pre-law student. He loves to read, paint, play card games and video games. He was diagnosed with CF as an infant. We’re going to talk about his CF journey and how life took a turn when he was being evaluated for a lung transplant in 2023 and 2024. Michael was featured in the 2025 Portraits of cystic fibrosis calen…
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"There is strength in weakness" is a paradox, but it is true. When we let go of ourselves and surrender to him, his power is shown that much stronger in our weakness as our lives are built and held up. This teaching is part of our February 2025 series, “Surrendering to His Will.” Join us each week as we learn the importance and benefits of giving o…
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Installing Open-WebUI and exploring local LLMs on CF: Cloud Foundry Weekly: Episode 46
1:09:44
1:09:44
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1:09:44We are kicking off our "How-To" mini-series with this episode! We will show a deep dive on deploying the popular open-webui application on Cloud Foundry! Open-WebUI is a great tool to explore and experiment with GenAI on your locally deployed LLMs running on the GenAI for Tanzu Platform tile. We will also deep dive into different model variants and…
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"Trusting His Plan Over Yours" :: Elliott Johnson
42:34
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42:34Trusting God is often one of the hardest things we can do. To fully give ourselves over to his will, rejecting our own, and believing that his way is better. But trust is a key and crucial step in discerning and living out God's will for our lives. This teaching is part of our February 2025 series, “Surrendering to His Will.” Join us each week as w…
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What is MCP? How can you use it with CF? : Cloud Foundry Weekly : Episode 45
1:00:56
1:00:56
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1:00:56Are you curious about the Model Context Protocol (MCP)? Join the show this week to hear from special guests Corby Page and Kirti Apte to learn the basics of MCP and to use that in the scope of your Cloud Foundry environment!By Nick Kuhn and Nicky Pike
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If you lose a child to CF, what does that do to parents? To their identity? And their place in the CF community. These are hard discussions to have, but for a couple years now Peggy Hawkins has want to share her story on this podcast. Peggy talks about the toll waiting for a transplant takes on a family. One of the issues was that one of them alway…
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As we embrace God's will for our lives, it takes conscious acts of surrender each day, laying our own will and desires at his feel and accepting what he has in store for us. This teaching is part of our February 2025 series, “Surrendering to His Will.” Join us each week as we learn the importance and benefits of giving our entire selfs to all that …
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Spring Office Hours Crossover : Cloud Foundry Weekly : Episode 44
1:02:20
1:02:20
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1:02:20DaShaun Carter and Dan Vega will join the show this week to give an update on what's going on in the world of Spring! Don't miss this episode to see how you can pair Cloud Foundry with our favorite java framework :)By Nick Kuhn and Nicky Pike
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CFRI-Funded Researchers Advance Science and Hope (Video)
3:50
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3:50In this brief video you will hear from several cystic fibrosis researchers whose work has been funded in part by the Cystic Fibrosis Research Institute. Hear about the innovative research they are pursuing, including phage therapy, stem cell research and gene editing. CFRI-funded research continues to advance our mission to find new therapies - and…
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CFRI-Funded Researchers Advance Science and Hope (Audio)
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3:50In this brief video you will hear from several cystic fibrosis researchers whose work has been funded in part by the Cystic Fibrosis Research Institute. Hear about the innovative research they are pursuing, including phage therapy, stem cell research and gene editing. CFRI-funded research continues to advance our mission to find new therapies - and…
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"Jesus is Our Example" :: Debbie Schwartz
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50:19In learning to live in the fullness of God's will, we have no better example than Jesus himself, who showed us what it looks like to walk lockstep in the way God created us to live. This teaching is part of our February 2025 series, “Surrendering to His Will.” Join us each week as we learn the importance and benefits of giving our entire selfs to a…
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Deploying Deepseek-r1 in your Datacenter : Cloud Foundry Weekly : Episode 43
57:52
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57:52Are you trying to make sense of all the AI news around deepseek-r1? Well, then join the show this week to get a deep dive on how to deploy deepseek-r1 in your datacenter running on the Tanzu Platform for Cloud FoundryBy Nick Kuhn and Nicky Pike
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Saving yourself by way of advocacy. Living with cystic fibrosis podcast host, Laura Bonnell talks to CF advocate, Amanda Boone about the fight that grew from a threat to her medications in Colorado. Amanda has led the way against the Prescription Drug Affordability Board (PDAB). Amanda, who has CF, was struggling prior to 2019 because her health wa…
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Your brain is an amazing and complex collection of neural pathways, and everything we learn and think about creates new connections that form our habits. But how can we keep those thoughts and neural connections focused on Jesus so that our habits make us more like him? This teaching is part of our January 2025 series, “Renewing the Mind.” Join us …
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Deep Dive on tPCF 10 : Cloud Foundry Weekly Episode 42
1:10:13
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1:10:13Nick and Nicky will explore the latest features released in tPCF 10. Be sure to check out this episode to learn about the latest updates in your favorite Cloud Foundry distribution.By Nick Kuhn and Nicky Pike
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Into the DMZ : 2025 Security Updates : Cloud Foundry Weekly Episode 41
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1:00:01DMZ will join the show to give the first Into the DMZ update for 2025. Be sure to check out this episode for the latest security updates in the Cloud Foundry ecosystem.By Nick Kuhn and Nicky Pike
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I have known Becky Penuel for many years. Becky used to run Miles for cystic fibrosis and then merged her nonprofit with Brian Callanan’s nonprofit, CF Life Fitness. After the merger, the nonprofit name is now: BreatheStrong. Becky is the Executive Director and was not able to join us today but, her Director of Operations is with us . Shawna Gray i…
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It's so important to guard and protect your thoughts and your mind and to keep them focused on what God says. By using Scripture as a filter, we can control and subdue our thoughts and align them with what God says so that we live out his will. This teaching is part of our January 2025 series, “Renewing the Mind.” Join us each week as we learn how …
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2024 Performance Review - Cloud Foundry Weekly Episode 40
1:06:15
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1:06:15Join the CF Weekly crew and special guest Cote as we complete our year-end performance review for the podcast. We will discuss the top episodes and events in the CloudFoundry/tech ecosystem, set goals, and look forward to upcoming events and episodes in 2025!By Nick Kuhn and Nicky Pike
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Modulators, Pregnancy, & The Power of Advocacy Through It All - Crystal Boeckel (Video)
6:38
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6:38In this podcast, Crystal Boeckel, an adult living with cystic fibrosis (CF), reflects on her experiences being pregnant and giving birth to her two sons, the first time off and the second time on a CFTR modulator therapy. Crystal shares the health challenges she faced in the latter half of both her pregnancies with cholestasis—a condition that occu…
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Modulators, Pregnancy, & The Power of Advocacy Through It All - Crystal Boeckel (Audio)
7:03
7:03
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7:03In this podcast, Crystal Boeckel, an adult living with cystic fibrosis (CF), reflects on her experiences being pregnant and giving birth to her two sons, the first time off and the second time on a CFTR modulator therapy. Crystal shares the health challenges she faced in the latter half of both her pregnancies with cholestasis—a condition that occu…
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The NonProfit Spot: a wealth of resources and classes about how to grow your board, fundraise and make strategic decisions that will change the trajectory of your Foundation for the better. They have an excellent newsletter too. Heather Carmona, the Managing Director (and co-founder) of NonProfit Spot is a great friend and I am honored to share all…
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God has a will for our lives, but often times our own thinking and plans get in the way and divert us from all that God has for us. How would our lives be different if we surrendered control and trusted in God's will for us? This teaching is part of our January 2025 series, “Renewing the Mind.” Join us each week as we learn how to guard our thought…
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I encourage everyone to attend conferences when you can. I meet the most interesting experts in the field of the nonprofit world. From scientists, to pharma, to other nonprofit execs like me. I was thrilled to meet Jenifer Waldrop. She joined the Black Women’s Health Imperative as the Executive Director of the Rare Disease Diversity Coalition (RDDC…
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"Transformation: The Word for 2025" :: Carlos Cedeño
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56:11
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56:11It's a new year, and we have a new word for the church. Join us live as Pastor Carlos shares the direction that God is leading us in for 2025 and what he wants us to learn. This episode was recorded on January 05, 2025, during our 11:00am worship service. Today’s speaker: Carlos Cedeño Translation: Byron Suquilanda Audio Engineer: Oliver Kaufmann T…
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"Spiritual Discipline: Fasting" :: Carlos Cedeño
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1:05:30As we end the year 2024, we look at the spiritual discipline of fasting in preparation for our annual church-wide fast to start in 2025. This episode was recorded on December 29, 2024, during our 10:30am worship service. Today’s speaker: Carlos Cedeño Translation: Sergio Zurita Audio Engineer: Oliver Kaufmann Theme Music by: Giancarlo Cordon Produc…
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"Jesus: Our Love in the Manger" :: Carlos Cedeño
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46:58This Christmas season, we will look at Jesus through the lens of the four candles of Advent - hope, peace, joy, and love. This teaching is part of our December 2024 series, “Advent." This episode was recorded on December 22, 2024, during our 10:30am worship service. Today’s speaker: Carlos Cedeño Translation: Sergio Zurita Audio Engineer: Oliver Ka…
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Cloud Foundry Weekly: Homelab Holiday Party : Episode 39
1:06:23
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1:06:23Join the extended Cloud Foundry weekly crew as we celebrate the holidays, reflect on the year, and geek out about our homelabs!By Nick Kuhn and Nicky Pike
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Cloud Foundry Weekly: Tanzu Value add for Cloud Foundry : Episode 38
1:01:26
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1:01:26This week, friends of the pod Tim Leong and Mark Fynes will join the show again to discuss all the goodness that Tanzu adds on top of the Cloud Foundry ecosystem.By Nick Kuhn and Nicky Pike
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Cloud Foundry Weekly: GenAI for TPCF is GA! : Episode 37
1:02:09
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1:02:09This will be the first part of our Tanzu Platform 10 launch coverage. Nicky and Nick will deep dive into the GA release of the GenAI for Tanzu Platform Tile. Don't miss this episode to get the latest tips and tricks on installing the GenAI tile.By Nick Kuhn and Nicky Pike
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