))
Untangling PANDAS & PANS: Conversations about Infection-Associated, Immune-Mediated Neuropsychiatric Disorders
»
S2 E14: When Everything Changes: Jen's Journey with PANS/PANDAS and the Fight to Be Believed
Manage episode 486298683 series 3567249
In this powerful episode of Untangling PANDAS and PANS, host Susan Manfull, PhD sits down with Jen, a resilient young woman whose health took a devastating and mysterious turn in her early twenties. From being taken out of work on a stretcher—twice—to struggling for answers amidst an array of debilitating physical and psychiatric symptoms, Jen shares a deeply personal account of navigating a fragmented medical system while battling PANS/PANDAS and related autoimmune conditions.
Jen recounts her long history of strep infections, early signs of neurological distress, misdiagnoses, and the profound impact of being dismissed by the medical community. She opens up about the moment she was finally heard, the diagnosis that changed everything, and her journey toward recovery with IVIG treatment. Now in graduate school and reclaiming her life, Jen offers hope, insight, and advice to others walking a similar path.
Disclaimer: The views and opinions expressed in this program are those of the speakers and do not necessarily reflect the views or positions of any entities they represent.
Credits: Music by Kingsley Durant from his "Convertible" album
To learn more about PANDAS and PANS and The Alex Manfull Fund, visit our website: TheAlexManfullFund.org
Follow us on:
Facebook
Instagram
LinkedIn
Chapters
1. Introduction to Pandas and Pans (00:00:00)
2. Jen's Medical Emergency at Work (00:02:27)
3. Recurring Health Crises and Allergic Reactions (00:09:31)
4. Early Symptoms: Health Issues at Age 10 (00:15:01)
5. College Years and Worsening Symptoms (00:26:34)
6. The Search for Medical Answers (00:35:23)
7. IVIG Treatment and Recovery Journey (00:42:40)
8. Current Life and Advice for Others (00:52:53)
18 episodes
Share
