In this episode, I have an illuminating discussion with Callum deQuevedo about his life-changing experience undergoing deep brain stimulation (DBS) surgery to treat his severe Tourette Syndrome (TS). Callum shares the incredible story of his journey to DBS, from exhausting medications and therapy options, to making the decision for surgery, going through the procedure and recovery, to the transformative impact it has had on reducing his tics and self-injurious behaviors. While not a cure, DBS has given Callum a new lease on life. This powerful testimony sheds light on an emerging treatment option that could help others find relief.
Episode Highlights:
[01:27] Callum emphasizes DBS is not a cure but has significantly reduced his tics.
[02:37] Callum details the lengthy DBS candidacy process.
[05:30] Mental health criteria for getting DBS.
[07:06] The process of DBS surgery.
[09:27] Remote monitoring of Callum's DBS device.
[10:58] Follow-up surgeries required.
[12:38] DBS reduced Callum’s motor tics by 70%.
[14:15] How DBS has lessened the burden of TS.
[15:30] DBS has saved money caused from severe tic episodes.
[16:25] How Callum enjoys going to the movies.
[18:10] Being triggered by each other’s tics.
[19:30] DBS has improved Callum's hand tremors and handwriting.
[20:23] Mental health benefits of DBS.
[21:33] Limitations after DBS, including high-contact sports and metal detectors.
[23:54] Callum’s future college and career plans.
[25:04] Impressed by Callum's deep knowledge of tic blockers.
[28:54] Finding a TS therapist.
[30:00] Callum’s one piece of advice for people with TS.
[31:40] Post-DBS, Callum needs less accommodation at school now.
Links & Resources:
New Jersey Center for Tourette Syndrome and Associated Disorders (NJCTS): https://njcts.org/
Remember, your story is powerful, and sharing your experiences can be the guiding light for someone else's journey. If you enjoyed this episode, please rate, follow, and share 'The Uptick' with others.

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