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Steve Johnston (A Race Against Blindness)

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Manage episode 382481999 series 3319776
Content provided by Lance Johnson. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Lance Johnson or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://podcastplayer.com/legal.

Episode 098 | Steve Johnston (A Race Against Blindness) joins the podcast! In this episode, Steve chats with Lance about his non-profit "A Race Against Blindness" which is an organization dedicated to finding a cure for the rare eye disease Retintis Pigmentosa (RP) caused by Bardet-Biedl Syndrome (BBS). Steve's son, Luke, has been diagnosed with BBS and is expected to become legally blind in his teenage years - if a cure is not available.

Lance and Steve also explore the intricacies of advocating for a cure while simultaneously learning to accept blindness, how to be a supportive parent to a child with a disability, the lack of resources for rare disease research, and more!

SEE-THROUGH is hosted by Lance Johnson. Based in New York City, Lance is a video editor living with an incurable eye condition called retinitis pigmentosa (or RP for short). In most cases, RP causes legal-blindness by the age of 40. Now 33, Lance uses SEE-THROUGH as a platform to explore his inevitable future of blindness through his transparent conversations with his guests.

-------------------------

SUPPORT SEE-THROUGH:

Merch: https://seethroughpod.com/merch

-------------------------

STEVE JOHNSTON LINKS:

A Race Against Blindness: https://araceagainstblindness.org/

Instagram: https://www.instagram.com/dad.vs.blindness/

-------------------------

SEE-THROUGH LINKS:

Subscribe: https://bit.ly/3JRSPEO

Instagram: https://instagram.com/seethroughpod

TikTok: https://www.tiktok.com/@seethroughpod

Twitter: https://twitter.com/seethroughpod

Facebook: https://www.facebook.com/seethroughpod

Website: https://www.seethroughpod.com/

  continue reading

133 episodes

Artwork
iconShare
 
Manage episode 382481999 series 3319776
Content provided by Lance Johnson. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Lance Johnson or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://podcastplayer.com/legal.

Episode 098 | Steve Johnston (A Race Against Blindness) joins the podcast! In this episode, Steve chats with Lance about his non-profit "A Race Against Blindness" which is an organization dedicated to finding a cure for the rare eye disease Retintis Pigmentosa (RP) caused by Bardet-Biedl Syndrome (BBS). Steve's son, Luke, has been diagnosed with BBS and is expected to become legally blind in his teenage years - if a cure is not available.

Lance and Steve also explore the intricacies of advocating for a cure while simultaneously learning to accept blindness, how to be a supportive parent to a child with a disability, the lack of resources for rare disease research, and more!

SEE-THROUGH is hosted by Lance Johnson. Based in New York City, Lance is a video editor living with an incurable eye condition called retinitis pigmentosa (or RP for short). In most cases, RP causes legal-blindness by the age of 40. Now 33, Lance uses SEE-THROUGH as a platform to explore his inevitable future of blindness through his transparent conversations with his guests.

-------------------------

SUPPORT SEE-THROUGH:

Merch: https://seethroughpod.com/merch

-------------------------

STEVE JOHNSTON LINKS:

A Race Against Blindness: https://araceagainstblindness.org/

Instagram: https://www.instagram.com/dad.vs.blindness/

-------------------------

SEE-THROUGH LINKS:

Subscribe: https://bit.ly/3JRSPEO

Instagram: https://instagram.com/seethroughpod

TikTok: https://www.tiktok.com/@seethroughpod

Twitter: https://twitter.com/seethroughpod

Facebook: https://www.facebook.com/seethroughpod

Website: https://www.seethroughpod.com/

  continue reading

133 episodes

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