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Episode 25: From Viral Infection to CBS: Nina Chesworth's Visual Odyssey

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Manage episode 424945171 series 3528525
Content provided by Shaimond Foye. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Shaimond Foye or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://podcastplayer.com/legal.

In this episode, Shaimond welcomes Nina Chesworth, a volunteer with Esme's Umbrella, to share her personal journey and insights into living with Charles Bonnet Syndrome (CBS). Nina discusses the complexities of her vision loss stemming from a viral infection and subsequent accidents, leading to her current state of blindness. She candidly describes her CBS experiences, including persistent and sometimes frightening hallucinations, and offers coping strategies such as mindfulness, yoga, and acceptance. The episode delves into the importance of support systems, education, and awareness to better manage this condition. Nina also highlights the broader efforts to raise awareness about CBS and shares information about available resources, including support groups and upcoming initiatives.

00:00 Introduction and Guest Introduction

01:14 Nina's Eye Condition and Surgeries

04:11 Experiencing Charles Bonnet Syndrome

07:26 Coping with Charles Bonnet Syndrome

11:46 Support and Awareness Efforts

20:11 Living with Hallucinations

31:27 Coping Mechanisms for Stress and Anxiety

32:45 Mindfulness Techniques for Hallucinations

33:33 Discussing the Film 'Aspectum'

37:01 Advice for Those with Charles Bonnet Syndrome

39:07 Personal Affirmations and Coping Strategies

40:27 Using Assistive Devices with Pride

43:32 The Importance of Support Groups

46:54 Raising Awareness and Seeking Help

51:57 Advice for Caregivers

Contact Nina at [email protected] or https://x.com/blind_but_sound

For help with Charles Bonnet Syndrome Call 1-704-389-0160

Contact me at [email protected]

For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at [email protected]

For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [email protected].

For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [email protected]

Contribute to this podcast's sustainability Donate

  continue reading

53 episodes

Artwork
iconShare
 
Manage episode 424945171 series 3528525
Content provided by Shaimond Foye. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Shaimond Foye or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://podcastplayer.com/legal.

In this episode, Shaimond welcomes Nina Chesworth, a volunteer with Esme's Umbrella, to share her personal journey and insights into living with Charles Bonnet Syndrome (CBS). Nina discusses the complexities of her vision loss stemming from a viral infection and subsequent accidents, leading to her current state of blindness. She candidly describes her CBS experiences, including persistent and sometimes frightening hallucinations, and offers coping strategies such as mindfulness, yoga, and acceptance. The episode delves into the importance of support systems, education, and awareness to better manage this condition. Nina also highlights the broader efforts to raise awareness about CBS and shares information about available resources, including support groups and upcoming initiatives.

00:00 Introduction and Guest Introduction

01:14 Nina's Eye Condition and Surgeries

04:11 Experiencing Charles Bonnet Syndrome

07:26 Coping with Charles Bonnet Syndrome

11:46 Support and Awareness Efforts

20:11 Living with Hallucinations

31:27 Coping Mechanisms for Stress and Anxiety

32:45 Mindfulness Techniques for Hallucinations

33:33 Discussing the Film 'Aspectum'

37:01 Advice for Those with Charles Bonnet Syndrome

39:07 Personal Affirmations and Coping Strategies

40:27 Using Assistive Devices with Pride

43:32 The Importance of Support Groups

46:54 Raising Awareness and Seeking Help

51:57 Advice for Caregivers

Contact Nina at [email protected] or https://x.com/blind_but_sound

For help with Charles Bonnet Syndrome Call 1-704-389-0160

Contact me at [email protected]

For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at [email protected]

For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [email protected].

For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [email protected]

Contribute to this podcast's sustainability Donate

  continue reading

53 episodes

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