In this episode of the Charles Bonnet Syndrome podcast, host Shaimond welcomes Evelyn Lewis, who shares her inspiring story of living with Charles Bonnet Syndrome (CBS). Evelyn details her lifelong struggle with visual impairments, beginning with her congenital condition Aniridia and subsequent battles with cataracts, glaucoma, retinal detachment, and cornea transplants. Despite significant visual loss and hallucinations associated with CBS, Evelyn speaks about her proactive approach to mental health, seeking therapy, and finding comfort in her faith and community activities. She also discusses the importance of acknowledging and sharing one's experiences, seeking medical and emotional support, and staying engaged in life. Evelyn's narrative is a testament to resilience in the face of ongoing challenges.

Contact Evelyn at [email protected]

Contact me at [email protected]

For help with CBS call 1-704-389-0160

For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at

For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [email protected]

For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [email protected].

For support or resources for CBS in Australia, please visit https://www.charlesbonnetsyndrome.org or email [email protected]

The Charles Bonnet Syndrome Podcast Merchandise

https://cbsyndromepodcast.com/merchandise

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