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Supporting Families: Navigating Rare Neurological Diseases with Tracy Kirby
Manage episode 518277014 series 3681114
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Join us on The Brain Camaraderie podcast as we dive into the world of rare neurological diseases like Batten with Tracy Kirby, a nationally recognized advocate and nonprofit leader. Discover her journey from a temp agency to becoming a pivotal figure in family support and fundraising for rare diseases. Tracy shares her insights on the emotional and logistical challenges faced by families, the importance of community support, and the need for policy changes in newborn screening. This episode is a heartfelt exploration of resilience, advocacy, and the power of community. Tune in to be inspired and informed.
Learn more:
https://linktr.ee/thebraincamaraderie
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