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The Hospitality of Need: Disability and Interdependence with Kevan Chandler

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Manage episode 509451815 series 3689068
Content provided by Amy Julia Becker. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Amy Julia Becker or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://podcastplayer.com/legal.

Many of us don't want to ask for help, but what if being needful isn’t weakness but a doorway to connection, friendship, and belonging? Kevan Chandler, coauthor of The Hospitality of Need, shares his personal story with Amy Julia Becker, reflecting on his experiences with spinal muscular atrophy, neediness, and the ways mutual care shapes his life. They explore:

  • What peer-to-peer caregiving looks like
  • How disability opens doors to friendship
  • Ways to start supportive friendships
  • How your view of need shapes connection
  • Why vulnerability and care are worth the risk

Connect to Community download: A one-page guide to help families experiencing disability map out the connections that matter most. With simple prompts, you’ll identify the peers, mentors, experts, and supports—both within the disability community and in your wider circles—that create strength, encouragement, and belonging for your family. Get the guide:

amyjuliabecker.com/connect-to-community-guide-free-download/

__

UPCOMING Q+R EPISODE: Record your question for our upcoming Question & Response episode: amyjuliabecker.com/qr/

__

00:00 Introduction

02:15 Kevin Chandler's Story of Disability and Neediness

10:51 Peer-to-Peer Caregiving

18:06 Building Relationships and Community

23:24 Final Thoughts and Invitations

__

WATCH this conversation on YouTube: Amy Julia Becker on YouTube

SUBSCRIBE to Amy Julia's Substack: amyjuliabecker.substack.com

JOIN the conversation on Instagram: @amyjuliabecker

LISTEN to more episodes: amyjuliabecker.com/shows/

_

ABOUT:

KEVAN CHANDLER is the founder of the nonprofit organization We Carry Kevan and speaks worldwide about friendship and disability. He and his wife, Katie, enjoy doing everything together, including growing vegetables and reading to each other.

Kevan was the second of his siblings to be diagnosed with spinal muscular atrophy, type 2, a rare neuromuscular disease. In 2016, he and his friends took a trip across Europe, leaving his wheelchair at home, and his friends carried him for three weeks in a backpack.

An avid storyteller, Kevan is an author and speaker worldwide about his friendships and unique life with a disability, being a featured speaker for Tedx and Google, as well as various conferences, pharmaceutical companies, and universities.

_


Take the Next Step
is produced in collaboration with Hope Heals. Hope Heals creates sacred spaces of belonging and belovedness for families affected by disabilities to experience sustaining hope in the context of inclusive, intentional, inter-ability communities. Find out more about our resources, gatherings, and inter-ability communities at hopeheals.com. Follow us on Instagram @hopeheals.
We want to hear from you. Send us a text!

  continue reading

Chapters

1. Introduction (00:00:00)

2. Kevan Story of Disability and Neediness (00:00:00)

3. Peer-to-Peer Caregiving (00:10:51)

4. Building Relationships and Community (00:18:06)

5. Final Thoughts and Invitations (00:23:24)

7 episodes

Artwork
iconShare
 
Manage episode 509451815 series 3689068
Content provided by Amy Julia Becker. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Amy Julia Becker or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://podcastplayer.com/legal.

Many of us don't want to ask for help, but what if being needful isn’t weakness but a doorway to connection, friendship, and belonging? Kevan Chandler, coauthor of The Hospitality of Need, shares his personal story with Amy Julia Becker, reflecting on his experiences with spinal muscular atrophy, neediness, and the ways mutual care shapes his life. They explore:

  • What peer-to-peer caregiving looks like
  • How disability opens doors to friendship
  • Ways to start supportive friendships
  • How your view of need shapes connection
  • Why vulnerability and care are worth the risk

Connect to Community download: A one-page guide to help families experiencing disability map out the connections that matter most. With simple prompts, you’ll identify the peers, mentors, experts, and supports—both within the disability community and in your wider circles—that create strength, encouragement, and belonging for your family. Get the guide:

amyjuliabecker.com/connect-to-community-guide-free-download/

__

UPCOMING Q+R EPISODE: Record your question for our upcoming Question & Response episode: amyjuliabecker.com/qr/

__

00:00 Introduction

02:15 Kevin Chandler's Story of Disability and Neediness

10:51 Peer-to-Peer Caregiving

18:06 Building Relationships and Community

23:24 Final Thoughts and Invitations

__

WATCH this conversation on YouTube: Amy Julia Becker on YouTube

SUBSCRIBE to Amy Julia's Substack: amyjuliabecker.substack.com

JOIN the conversation on Instagram: @amyjuliabecker

LISTEN to more episodes: amyjuliabecker.com/shows/

_

ABOUT:

KEVAN CHANDLER is the founder of the nonprofit organization We Carry Kevan and speaks worldwide about friendship and disability. He and his wife, Katie, enjoy doing everything together, including growing vegetables and reading to each other.

Kevan was the second of his siblings to be diagnosed with spinal muscular atrophy, type 2, a rare neuromuscular disease. In 2016, he and his friends took a trip across Europe, leaving his wheelchair at home, and his friends carried him for three weeks in a backpack.

An avid storyteller, Kevan is an author and speaker worldwide about his friendships and unique life with a disability, being a featured speaker for Tedx and Google, as well as various conferences, pharmaceutical companies, and universities.

_


Take the Next Step
is produced in collaboration with Hope Heals. Hope Heals creates sacred spaces of belonging and belovedness for families affected by disabilities to experience sustaining hope in the context of inclusive, intentional, inter-ability communities. Find out more about our resources, gatherings, and inter-ability communities at hopeheals.com. Follow us on Instagram @hopeheals.
We want to hear from you. Send us a text!

  continue reading

Chapters

1. Introduction (00:00:00)

2. Kevan Story of Disability and Neediness (00:00:00)

3. Peer-to-Peer Caregiving (00:10:51)

4. Building Relationships and Community (00:18:06)

5. Final Thoughts and Invitations (00:23:24)

7 episodes

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