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Sleep Isn’t Simple: What Living With CP and Epilepsy Taught Kayla About Surviving, Thriving, and What Really Restores Us

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Manage episode 506864112 series 3469332
Content provided by Alison Kole. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Alison Kole or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://podcastplayer.com/legal.

Guest Spotlight: Kayla Ireland

Meet Kayla Ireland—author, disability advocate, and host of Kindly Neurodivergent with Kay. Kayla’s lived experience with cerebral palsy and epilepsy is not just a story of overcoming challenges; it’s a blueprint for thriving in a world that too often overlooks disability, sleep struggles, and neurodivergence.

Why This Conversation Will Change Everything

Sleep isn’t just downtime for Kayla—it’s the foundation for everything she does. In this raw conversation, Dr. Alison Kole and Kayla Ireland shed light on how living with cerebral palsy and epilepsy means every night's rest is an uphill fight against pain, exhaustion, and unpredictable seizures—where sleep can make or break daily life. From adaptive routines to seizure monitoring, you’ll learn how basic rest becomes a radical act of self-care—and how lack of sleep can sabotage independence for millions with chronic conditions.

The Truth About Sleep, Disability, and Quality Of Life

What makes this episode a must-listen?

  • Invisible labor: Kayla shares how every night is “recovery from non-stop effort,” and why fatigue isn’t just tiredness—it impacts movement, thinking, and emotional health.
  • Family secrets: The vital role families play in spotting subtle seizure warning signs, plus practical ways every household can make sleep safer for disabled loved ones.
  • Adaptation > Advice: Why cookie-cutter sleep tips miss the mark, and how real strategies—from bed elevation to communication support—unlock better rest and real independence.
  • Universal lessons: Sleep isn’t only a medical metric—it’s a core human right. This episode uncovers the emotional toll and the power of prioritizing sleep, for disabled and neurodivergent people, but also for everyone whose sleep is more complex than it seems.

Who Should Listen?

Anyone ready to challenge what they think they know about sleep, inclusion, and healing. If you work in health, education, support, or just want another reason to advocate for a better world—this episode will give you the tools and perspective you need.

  continue reading

88 episodes

Artwork
iconShare
 
Manage episode 506864112 series 3469332
Content provided by Alison Kole. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Alison Kole or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://podcastplayer.com/legal.

Guest Spotlight: Kayla Ireland

Meet Kayla Ireland—author, disability advocate, and host of Kindly Neurodivergent with Kay. Kayla’s lived experience with cerebral palsy and epilepsy is not just a story of overcoming challenges; it’s a blueprint for thriving in a world that too often overlooks disability, sleep struggles, and neurodivergence.

Why This Conversation Will Change Everything

Sleep isn’t just downtime for Kayla—it’s the foundation for everything she does. In this raw conversation, Dr. Alison Kole and Kayla Ireland shed light on how living with cerebral palsy and epilepsy means every night's rest is an uphill fight against pain, exhaustion, and unpredictable seizures—where sleep can make or break daily life. From adaptive routines to seizure monitoring, you’ll learn how basic rest becomes a radical act of self-care—and how lack of sleep can sabotage independence for millions with chronic conditions.

The Truth About Sleep, Disability, and Quality Of Life

What makes this episode a must-listen?

  • Invisible labor: Kayla shares how every night is “recovery from non-stop effort,” and why fatigue isn’t just tiredness—it impacts movement, thinking, and emotional health.
  • Family secrets: The vital role families play in spotting subtle seizure warning signs, plus practical ways every household can make sleep safer for disabled loved ones.
  • Adaptation > Advice: Why cookie-cutter sleep tips miss the mark, and how real strategies—from bed elevation to communication support—unlock better rest and real independence.
  • Universal lessons: Sleep isn’t only a medical metric—it’s a core human right. This episode uncovers the emotional toll and the power of prioritizing sleep, for disabled and neurodivergent people, but also for everyone whose sleep is more complex than it seems.

Who Should Listen?

Anyone ready to challenge what they think they know about sleep, inclusion, and healing. If you work in health, education, support, or just want another reason to advocate for a better world—this episode will give you the tools and perspective you need.

  continue reading

88 episodes

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