Summer Holiday Struggles and Strategies for SEND Families
Manage episode 495769804 series 3660914
In this week's episode of The Autism Mums Podcast Victoria and Natalie open up about the often-overlooked challenges that school holidays bring for families of autistic children. While many look forward to summer as a time to unwind, for SEND families, it can mean disrupted routines, inaccessible childcare, and emotional overload for both children and parents.
Key Takeaways
- The change in routine of the summer holidays can cause emotional distress for autistic children (such as Natalie's son.)
- Traditional holiday clubs are often not suitable for neurodivergent children
- Planning can be helpful for some families -Structured days with visual timetables and pre-planned outings
- Finding clubs with adequate support for older children—or any children under 8—is still a major barrier for many families.
- Even the best laid plans can need flexibility, especially when emotions run high or children have different needs on the day.
- You may find it works best to create moments for each child to have their needs met, sometimes separately.
- Finding other parents in similar situations provides not just understanding, but practical help from playdates to moral support.
- Self-care can be challenging but it's still important, even it you can find small moments for an evening meditation or a chat with a friend.
- Joy can be found in simpler, slower summer moments
Mentioned in This Episode
Learn more about visual timetables - https://www.caudwellchildren.com/visual-timetables-for-autistic-children/
ASCape - https://ascapegroup.org/
Connect with The Autism Mums
https://theautismmums.com/
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Transcript
[00:00:00] Hello and welcome to
the Autism Mums podcast. I'm Victoria. And I'm Natalie. We are two sisters
raising autistic children who know the joy, the challenges, and the everyday
moments. This is a supportive space for honest conversations, practical tips,
shared strength and expert advice. Whether you are celebrating a win, surviving
a meltdown, or just trying to make it through the day, we are right here with
you.
Join us as we share the ups, the downs, and everything in
between parenting autistic children.
Victoria Bennion:
Hello, I'm Victoria, and today we're talking about something that can be
especially tough for many families. The school holidays, when you hear the word
holiday, most people think of relaxing, unwinding, and quality family time. But
if you're raising an autistic child, the reality can look very different.
Victoria Bennion: It
does for Natalie. So in this episode, we're sharing honest stories from our own
lives. [00:01:00] We're talking about what's
worked, what hasn't, and sharing a few simple strategies that we've found
helpful that we hope might help you to make Summer a little more manageable.
Natalie Tealdi: this
is a time of year that we really struggle with because our son really loves his
routine, so now he's in A school he enjoys, he likes to go there every day and
he'd quite happily go there every day of the week. Thank you very much. All
year round, which I'm sure his teachers would absolutely love.
Natalie Tealdi: So we
notice as school holidays are approaching perhaps. Two weeks before each
holiday, he starts to get more stressed. We see more stimming, more
dysregulated behaviors, his diet's affected, doesn't eat as much, those kind of
things. So when it actually gets to holidays, he just doesn not like being out
of his routine,
Victoria Bennion:
I've heard other parents say the same struggle, but for my son, he's counting
down [00:02:00] to the holidays and he loves
that all the pressure has taken off. I so it's really interesting always for me
to hear I'm sorry for you that it's challenging.
Natalie Tealdi: Yeah,
and I think it is also, it's a bit of a mindset thing because you hear holiday
and you think, oh, time to relax. Oh, it'd be so nice if it was like that. And
I know that it is like that for some families and that's brilliant. But for us
it actually means more work, more planning needs to be involved.
Natalie Tealdi: He's
very physical, so it's not only the mental planning that needs to go into it,
it's the physical as well. I need to be on it. I need to be doing things with
him because he needs that physical stimulation.
Victoria Bennion: I
remember when he was quite little and you were trying to find suitable clubs
and you had a bad experience with the holiday club. That was quite early on, .
That was when you were starting to realize that there were some issues here.
Things were not all Okay.
Natalie Tealdi: That
club [00:03:00] was, I'd put him in for three
full days a week. I think it was two or three, so that I could work. At that
point I was working at a university. So I put him into. This club, and it was a
disaster. He just could not cope. He tried to run away several times. He was
kicking out. He just did not want to be there, did not want to join in and
wasn't coping.
Natalie Tealdi: And
at the time I didn't know what was going on because I had inklings that he was
struggling with things, but I didn't really know why. And we ended up taking
him out of there and I had to reduce my work hours, which was very stressful
'cause I just couldn't do my job properly. And it was then, that was before he
started school.
Natalie Tealdi: So it
was then that I contacted the senco at the school to alert them to this
experience so that they were a bit prepared for when he started school.
Victoria Bennion: The
following year, when you started. Looking for clubs or how you were gonna cover
the summer holidays, you knew that clubs like that wouldn't [00:04:00] be a good fit for your son.
Natalie Tealdi:
Exactly. We knew that he needed a lot more support. He finds following
instructions very difficult, and also he doesn't. Really like following
instructions. So if a game is a certain way, he will look at it and think let's
play it a different way and design his own. So he's very, it's clever in that
way, but he needs a lot of support for following instructions and also managing
his emotions too.
Victoria Bennion:
When you are looking at clubs, what are the kind of clubs that he would like to
do?
Natalie Tealdi: He
enjoys water sports climbing. That kind of thing. Very physical things, but he
would need somebody with him.
Victoria Bennion: Was
his age a factor in finding clubs that had the right support?
Natalie Tealdi: Yeah
I found that under eight, particularly a lot of clubs just wouldn't take under
eights. I dunno why that is.
Natalie Tealdi: I
wonder if it's to do with [00:05:00] personal
care or.
Victoria Bennion:
Could be.
Natalie Tealdi: I
don't know, level of maturity generally,
Victoria Bennion: So
what did you do? In that time where you couldn't find clubs that would take him
'cause he wasn't old enough, if they did have the right support and you
couldn't put him into clubs for neurotypical children because he wouldn't cope
or they wouldn't go well. So what were you left with when you were trying to
juggle working and your other child?
Natalie Tealdi: It's
basically down to us. So what we actually did was get a nanny for our younger
child because that was easier to find care for her. It's expensive option. But
I didn't want to put her in a child minder when she was so little. So we got a
nanny in that could look after her sometimes in the home and sometimes take her
out so that I could fully focus on my son.
Natalie Tealdi: And
we still have the nanny now. Not as many hours, but. We do, and we also, we are
lucky enough to, [00:06:00] we do get funding
for our son now to have a pa, but that's only for four hours a week during
holidays. So when it comes to me working, it doesn't leave much room with the
childcare that's involved to me and my husband.
Natalie Tealdi: Take
a lot of time off.
Victoria Bennion: I
think that's true of a lot of families who have the same difficulties as you do
is very hard. Few weeks to juggle.
Natalie Tealdi: Yeah,
and I find that I want to work because that is my time off. And then I feel
guilty saying that. 'cause of course I like to spend time with my children, but
at the same time, that is my respite as well. And I do need that time to just
be me.
Victoria Bennion:
That makes sense. Since he's turned 8, have you found that now you have more
options for this summer?
Natalie Tealdi: Not a
whole load more. It's not just finding activities. It's finding things that he
would be willing to go to and be willing to try. And that can be, tricky in
itself.
Victoria Bennion: At [00:07:00] the beginning you talked a little bit
about. Needing to plan and how your son likes the structure of school. So how
do you approach this in the holidays to ensure that he has structure? I'm
assuming you can't just say, today, think we'll go to the beach.
Natalie Tealdi: No,
we can't do that. We use visual timetables and. I organize play dates with
children that I know he will play well with. They all involve me though, so
it's not like I can drop him off at a friend's house and leave him. I have to
be there, which means I then need care for the younger one because where
they've got the age gap, it's not compatible.
Natalie Tealdi: So
play dates family trips. And yet the visual timetables, timers,
Victoria Bennion:
They're good tips. What would you suggest you do? If you've got a family and
you have both neurodivergent children and neurotypical children in it, how do
you cater for both?[00:08:00]
Natalie Tealdi: That
is a very good question and I'm not sure I can answer it myself. It's something
we are working through
Victoria Bennion: I
actually think even if you have neurodivergent children, their needs might be
very different. As we've just talked about. Holidays don't bring the same
problem to me as they do for you. So you could have one of mine and one of
yours within the same family. So I'm imagining that would. Require different
skills.
Victoria Bennion:
Like you a timetable's, really important, but my son's just turned 11, so what
we make use of now is the calendar that he has in his room. He's okay with it
being written, but he needs to see what's the plan is and ideally the timings.
That's the bit I struggle with, but. If he can see the shape of the week, like
you, it's very difficult to just be spontaneous and say, today we're going to
do this.
Victoria Bennion: For
his anxiety levels, it needs to be structured and it needs to be planned.
Victoria Bennion: I [00:09:00] used to get it so wrong for what my son
needed. I used to think I was being great. I was taking them out. I was
planning all these things and actually I was overloading him particularly, I
think now I was probably overloading my daughter as well they both benefit from
that downtime.
Victoria Bennion: I
realized that. Whilst we do activities, they need to recover from that and it
takes quite a lot outta them.
Natalie Tealdi: Yeah,
that's true. And I do, we timetable in time apart from the two siblings so that
they both get time to themselves. They both get time just with mom or just with
dad as well, which can help.
Victoria Bennion:
that's a good idea. That's a good idea. We definitely have to do some separate
things as well because it just. My daughter can cope with going to town, for
example, whereas my son would find a trip like that quite hard. So yeah, it's
looking at what works for which child and then [00:10:00]
who's around and how you can split up your time.
Natalie Tealdi: And I
also think is if you plan days out. You've gotta be able to adapt those plans
because you can plan to go out for a day altogether and you can be just about
to get in the car and then one of them decides, no, can't do that today. So
it's about having a plan B there that can help as well.
Victoria Bennion:
Yeah, that's a good point. That is a good point. I think we probably don't do a
lot of that. We tend to plan lots of little things nearby things because it's,
without thinking about it really, isn't it? It's, it comes over the years of
knowing what works and what doesn't work.
Victoria Bennion: And
we've had disastrous trips to Legoland and places like that just don't work for
my son. So we keep it a lot more low key in the summer holidays. Luckily, we
live. In a holiday destination.
Natalie Tealdi: Yeah,
Victoria Bennion: At
this point, I know the [00:11:00] kind of
activities that are gonna work like the beach, like the woods nature, not too
busy.
Victoria Bennion: , I
was thinking about friends the other day who go to so many of , the local
events that take place in air shows and, . I automatically filter them out. I
don't even consider going
Natalie Tealdi: I
know. Yeah. And actually I struggle with those myself. So there you go.
Victoria Bennion:
Okay.
Natalie Tealdi: Yeah,
so then to have to support the children when I'm struggling myself is even
worse.
Victoria Bennion:
What would you say about community support? How useful is that?
Natalie Tealdi: So I
would say reach out to parents in similar situations because that's one thing
that really helps me is other parents and arranging play dates with those kids
because they get it and if you're gonna be late they'll understand. And you can
vent to each other, got some good mum
Natalie Tealdi:
friends.
Victoria Bennion: who
understand. How do you look after yourself over [00:12:00]
the summer?
Natalie Tealdi: Not
very well because I find once I've got the activities planned for the children
and work sorted out, I just get left to the bottom of the pile which is wrong.
I need to get better at that. It's my evenings, I just try to just do a bit of
meditation. Just something very simple or chatting with a friend, but I don't
arrange social stuff for myself 'cause it's too much on top of everything else.
Victoria Bennion:
Yeah, I think it depends as well if you find social things uplifting or if they
drain you as well,
Natalie Tealdi: Yes,
that is a very good point. I can find social things tricky anyway, so I have to
manage my own stress.
Victoria Bennion: And
that makes sense that you have to do what works for you. Alright, so how can
parents go about building a network of support through the summer holidays? I.
Natalie Tealdi: [00:13:00] I think support groups a great way to meet
people.
Victoria Bennion:
There are some good ones near us. There's ASCape in Bridport? if you join
local, send Facebook groups, you might see activities there or meetups
Natalie Tealdi: like
family days, don't they? Where the parents go along, but then you can just chat
to other parents and,
Victoria Bennion:
Yeah. So it's a dual purpose, so it can give you somewhere that you can take
the children and also that's how you can start building a network and finding
people who understand that your situation.
Natalie Tealdi: I
wish there were more of them, to be honest.
Victoria Bennion:
It's definitely something that's really needed.
Natalie Tealdi: In an
ideal world, I wish the school ran summer activities, even if it was like.
Really reduced maybe just every morning or something like that. That would be
something to give a little bit of respite, but also provide that routine for
the children.
Victoria Bennion: My
son's school does run something attached as a [00:14:00]
riding stables, but. It's also quite expensive, and as I say, it's not
something that we need to look at, again, it's budgeting it all as well, isn't
it?
Natalie Tealdi: Yeah,
I remember one year I booked quite a lot of send activities for my son and I
drove all around the county. Obviously when I booked them, I didn't really
research where we were going, and I ended up on all these long drives down farm
tracks and by the time we actually got there, me and my son were both
exhausted.
Natalie Tealdi: But
yeah, so I've learned from that experience to look at where these places are
before you book.
Victoria Bennion: I
think I remember that because it was quite good, wasn't it? Quite a lot of
sporting activities and things that he liked. It was just not always anywhere
near where we live.
Natalie Tealdi: Yes,
exactly. I didn't realize quite the area that was covered I thought was more
local, but yes, now I know better.
Victoria Bennion: So
you go into September exhausted, and then for me, that's more where [00:15:00] our struggles will begin with having to go
back to school, which I think is worth another episode
Natalie Tealdi: yeah,
I think so. It's like we flip, don't we? we...
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