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30. MY UPDATE: The Lipedema Op: The Invisible Illness You Weren’t Supposed to Notice

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Manage episode 500057711 series 3549378
Content provided by Jane McFadden. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Jane McFadden or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://podcastplayer.com/legal.

If you’ve already heard MY UPDATE: What Happens When You Lose the Meds That Helped You Survive, you know Part 1 ended on the decision to have lipedema surgery after years of chronic pain, medical dismissal, and the sudden loss of ADHD medication.

This is what happened next.

In this follow-up episode, Jane takes you behind the curtain of the surgery itself — the reality of navigating a system that still sidelines women’s pain, the complications that no one warns you about, and the rare heart condition that made recovery far more complex than expected. From confronting family history to managing without ADHD meds during the most physically demanding season of her life, Jane shares the messy truth of advocating for your health when the system isn’t built for you.

It’s raw, unfiltered, and painfully familiar for anyone who’s ever been left to fight for care they shouldn’t have to beg for.

IN THIS EPISODE:

  • What surgery for lipedema is actually like — and what recovery demands of your body
  • The rare heart finding that changed everything mid-recovery
  • The emotional toll of being unsupported in hospital
  • The overlap between lipedema, neurodivergence, and chronic illness
  • How losing ADHD medication in the middle of recovery amplified every challenge
  • Why women’s health advocacy has to start with telling the full, unvarnished story

💭 This episode is for you if:
– You listened to Part 1 and want to know the full story
– You’ve experienced surgery or medical treatment without adequate support
– You’re living with invisible illness and fighting to be believed
– You’ve faced the grief of losing tools that helped you function

Listen to Part 1: What Happens When You Lose the Meds That Helped You Survive

Check out IG posts here.

📚 Resources & References

Related Episodes:

Connection Between ADHD, EDS and POTS

Listen here on Spotify

Listen here on Apple

Lipedema surgery information


💓 SVT (Supraventricular Tachycardia)


🦓 Ehlers-Danlos Syndrome (EDS)

  • Ehlers-Danlos Society Australia — Advocacy, support, and medical resources for people with EDS.
  • Episode 41: ADHD + EDS and POTS – Spotify | Apple Podcast — How these conditions overlap, with expert and lived-experience insight.
  • Episode 62: Burnout, Pain & Weird Symptoms? The ADHD Link No One Told Us About – Spotify | Apple Podcast — The hidden ADHD links to chronic pain, fatigue, and “mystery” symptoms.

🧬 RYR2 rare heart gene


💬 Community

  • ADHD Mums Facebook Group — A safe, neuro-affirming space to connect with other ADHD mums, share resources, and get support.

JOIN THE COMMUNITY:

Have questions or want to connect with other ADHD mums? Join our supportive Facebook group here and dive into the conversation. No question is too small, and I love answering in a group format!

FOLLOW FOR MORE:

Get daily tips, insights, and relatable content for ADHD mums by following me on Instagram, Facebook, TikTok or YouTube

LEAVE A REVIEW:

Love this episode? Your review means everything! It helps other mums find this content and feel supported. Let’s spread the word and make a difference together.

COLLABS:

For collaborations or speaking engagements, email me at [email protected].

MORE RESOURCES:

Still unsure if ADHD or autism applies to you or your child? Take my recommended self-tests here.

🧠 TOPICS COVERED IN THIS EPISODE:
lipedema surgery, invisible illness, women’s health gaslighting, rare heart conditions, SVT, RYR2 gene, ADHD medication access, stimulant withdrawal, chronic illness grief, hypermobility, ARFID, anorexia history, medical trauma, neurodivergent women’s health, hospital recovery, emotional regulation, executive dysfunction, parenting with chronic illness, survival mode, neuroaffirming support.

See omnystudio.com/listener for privacy information.

  continue reading

222 episodes

Artwork
iconShare
 
Manage episode 500057711 series 3549378
Content provided by Jane McFadden. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Jane McFadden or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://podcastplayer.com/legal.

If you’ve already heard MY UPDATE: What Happens When You Lose the Meds That Helped You Survive, you know Part 1 ended on the decision to have lipedema surgery after years of chronic pain, medical dismissal, and the sudden loss of ADHD medication.

This is what happened next.

In this follow-up episode, Jane takes you behind the curtain of the surgery itself — the reality of navigating a system that still sidelines women’s pain, the complications that no one warns you about, and the rare heart condition that made recovery far more complex than expected. From confronting family history to managing without ADHD meds during the most physically demanding season of her life, Jane shares the messy truth of advocating for your health when the system isn’t built for you.

It’s raw, unfiltered, and painfully familiar for anyone who’s ever been left to fight for care they shouldn’t have to beg for.

IN THIS EPISODE:

  • What surgery for lipedema is actually like — and what recovery demands of your body
  • The rare heart finding that changed everything mid-recovery
  • The emotional toll of being unsupported in hospital
  • The overlap between lipedema, neurodivergence, and chronic illness
  • How losing ADHD medication in the middle of recovery amplified every challenge
  • Why women’s health advocacy has to start with telling the full, unvarnished story

💭 This episode is for you if:
– You listened to Part 1 and want to know the full story
– You’ve experienced surgery or medical treatment without adequate support
– You’re living with invisible illness and fighting to be believed
– You’ve faced the grief of losing tools that helped you function

Listen to Part 1: What Happens When You Lose the Meds That Helped You Survive

Check out IG posts here.

📚 Resources & References

Related Episodes:

Connection Between ADHD, EDS and POTS

Listen here on Spotify

Listen here on Apple

Lipedema surgery information


💓 SVT (Supraventricular Tachycardia)


🦓 Ehlers-Danlos Syndrome (EDS)

  • Ehlers-Danlos Society Australia — Advocacy, support, and medical resources for people with EDS.
  • Episode 41: ADHD + EDS and POTS – Spotify | Apple Podcast — How these conditions overlap, with expert and lived-experience insight.
  • Episode 62: Burnout, Pain & Weird Symptoms? The ADHD Link No One Told Us About – Spotify | Apple Podcast — The hidden ADHD links to chronic pain, fatigue, and “mystery” symptoms.

🧬 RYR2 rare heart gene


💬 Community

  • ADHD Mums Facebook Group — A safe, neuro-affirming space to connect with other ADHD mums, share resources, and get support.

JOIN THE COMMUNITY:

Have questions or want to connect with other ADHD mums? Join our supportive Facebook group here and dive into the conversation. No question is too small, and I love answering in a group format!

FOLLOW FOR MORE:

Get daily tips, insights, and relatable content for ADHD mums by following me on Instagram, Facebook, TikTok or YouTube

LEAVE A REVIEW:

Love this episode? Your review means everything! It helps other mums find this content and feel supported. Let’s spread the word and make a difference together.

COLLABS:

For collaborations or speaking engagements, email me at [email protected].

MORE RESOURCES:

Still unsure if ADHD or autism applies to you or your child? Take my recommended self-tests here.

🧠 TOPICS COVERED IN THIS EPISODE:
lipedema surgery, invisible illness, women’s health gaslighting, rare heart conditions, SVT, RYR2 gene, ADHD medication access, stimulant withdrawal, chronic illness grief, hypermobility, ARFID, anorexia history, medical trauma, neurodivergent women’s health, hospital recovery, emotional regulation, executive dysfunction, parenting with chronic illness, survival mode, neuroaffirming support.

See omnystudio.com/listener for privacy information.

  continue reading

222 episodes

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