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Optimal care of spina bifida during different stages of life

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Manage episode 451978957 series 3324778
Content provided by International Spinal Cord Society (ISCoS). All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by International Spinal Cord Society (ISCoS) or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://podcastplayer.com/legal.

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In this episode, host Rima Kamal (Wellspect) explores the complexities of caring for children with spina bifida with Dr Fahad Alyami, Head of the Saudi Paediatric Urology Group and Associate Professor at King Faisal Specialty Hospital and Research Centre in Riyadh. The discussion delves into the critical aspects of paediatric care for those with spina bifida, from early intervention to adolescent transition. Dr Alyami explains the importance of bladder management from birth, the challenges families face in daily care routines, and the crucial role of multidisciplinary healthcare teams.

The conversation addresses key aspects of paediatric care, particularly the transition from childhood to adult healthcare services. Dr Alyami emphasises the significance of specialised spina bifida clinics where multiple specialists can coordinate care under one roof, highlighting the development of transitional urology as a subspecialty to bridge the gap between paediatric and adult care. The discussion concludes with inspiring success stories of individuals with spina bifida who have gone on to lead fulfilling lives, including having families of their own, demonstrating how proper medical care and support can positively impact life outcomes.

The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies.

You can follow us on Twitter and LinkedIn
The SCI Care: What Really Matters podcast aims to provide valuable insights and the most up-to-date information for those providing care to people with spinal cord injury (SCI) worldwide. The vision of the International Spinal Cord Society (ISCoS) is to "facilitate healthy and inclusive lives for people with spinal cord injury or dysfunction globally".

Contact us directly with any questions or comments at [email protected]

  continue reading

Chapters

1. Optimal care of spina bifida during different stages of life (00:00:00)

2. Child Spina Bifida Care (00:00:04)

3. Challenges in Spina Bifida Care (00:10:02)

4. Transitioning Pediatric to Adult Urology (00:20:51)

5. Optimal Bladder Management in Spina Bifida (00:25:46)

6. Parenting Children With Spina Bifida (00:31:55)

7. Empowering Spina Bifida Caregivers (00:37:16)

78 episodes

Artwork
iconShare
 
Manage episode 451978957 series 3324778
Content provided by International Spinal Cord Society (ISCoS). All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by International Spinal Cord Society (ISCoS) or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://podcastplayer.com/legal.

Send us a text

In this episode, host Rima Kamal (Wellspect) explores the complexities of caring for children with spina bifida with Dr Fahad Alyami, Head of the Saudi Paediatric Urology Group and Associate Professor at King Faisal Specialty Hospital and Research Centre in Riyadh. The discussion delves into the critical aspects of paediatric care for those with spina bifida, from early intervention to adolescent transition. Dr Alyami explains the importance of bladder management from birth, the challenges families face in daily care routines, and the crucial role of multidisciplinary healthcare teams.

The conversation addresses key aspects of paediatric care, particularly the transition from childhood to adult healthcare services. Dr Alyami emphasises the significance of specialised spina bifida clinics where multiple specialists can coordinate care under one roof, highlighting the development of transitional urology as a subspecialty to bridge the gap between paediatric and adult care. The discussion concludes with inspiring success stories of individuals with spina bifida who have gone on to lead fulfilling lives, including having families of their own, demonstrating how proper medical care and support can positively impact life outcomes.

The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies.

You can follow us on Twitter and LinkedIn
The SCI Care: What Really Matters podcast aims to provide valuable insights and the most up-to-date information for those providing care to people with spinal cord injury (SCI) worldwide. The vision of the International Spinal Cord Society (ISCoS) is to "facilitate healthy and inclusive lives for people with spinal cord injury or dysfunction globally".

Contact us directly with any questions or comments at [email protected]

  continue reading

Chapters

1. Optimal care of spina bifida during different stages of life (00:00:00)

2. Child Spina Bifida Care (00:00:04)

3. Challenges in Spina Bifida Care (00:10:02)

4. Transitioning Pediatric to Adult Urology (00:20:51)

5. Optimal Bladder Management in Spina Bifida (00:25:46)

6. Parenting Children With Spina Bifida (00:31:55)

7. Empowering Spina Bifida Caregivers (00:37:16)

78 episodes

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