Development of the TIFFIN recommendations for co-producing palliative and end-of-life care research with individuals with lived experience of homelessness: A qualitative study

Sage Palliative Medicine & Chronic Care

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This episode features Jodie Crooks (Marie Curie, London, UK) and Dr Briony Hudson (Marie Curie, London, UK; Marie Curie Palliative Care Research Department, University College London, London, UK).

What is already known about the topic?

Research into palliative care for people experiencing homelessness is complex and requires input from people with lived experience.
There is a dearth of evidence and/or guidance in how to support researchers to involve people with lived experience of homelessness in palliative care research.

What this paper adds?

Co-production of palliative and end-of-life-care research with people with lived experience of homelessness needs to be transparent, prioritise building rapport, be trauma-informed and person-centred.
Reimbursement should always be offered to co-producers. The method of reimbursement should consider the context of involvement (i.e. the individual’s circumstances) where possible.
There is a need to evidence the impact of involvement, to facilitate a change in research culture which prioritises hearing the voices of different groups.

Implications for practice, theory, or policy

Involving people with lived experience of homelessness can help researchers to identify unknown unknowns within the field of palliative care: it can validate, enhance and direct research to the intricacies of their experiences.
The TIFFIN recommendations provide guidance for how to achieve co-production within this field in a trauma informed way.

Full paper available from:

https://journals.sagepub.com/doi/full/10.1177/02692163241259667

If you would like to record a podcast about your published (or accepted) Palliative Medicine paper, please contact Dr Amara Nwosu:

[email protected]

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