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Should I get genetic testing?

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Manage episode 517822614 series 2953326
Content provided by Remember Me Podcast. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Remember Me Podcast or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://podcastplayer.com/legal.

We’re tackling the question - Should I get genetic testing?

We have the incredible return guest - Erynn Gordon, CGC, program manager at Progranulin Information Navigator. We also brought on some incredible advocates in the FTD Community - Annika from Cure MAPT FTD, Jackie & Wanda from CureGRN and Michael from End the Legacy to share their personal experiences and thought processes around genetic testing.

Let us know what you think when you listen. - R+M

A VERY special thank you to today’s sponsors Progranulin Information Navigator and Psilera.

FTD Genetic Resources:

Progranulin Information Navigator

Cure MAPT FTD

CureGRN

End The Legacy - ALS & FTD

FTD Disorders Registry

The Penn FTD Center Genetics Resources

The AFTD Genetics Overview

The National Society of Genetic Counselors

UCSF Memory Familial FTD Page

Want to support the podcast + get more content? Join us on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Patreon⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠! You get exclusive content + a space to share and connect with others. ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠www.patreon.com/remembermecommunity⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠

If you're curious about anything RM, we'd love to connect with you on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Instagram, and visit ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠our website at⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ www.remembermeftd.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠, all the latest updates!

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Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD).

Always, always accept the good.

  continue reading

166 episodes

Artwork
iconShare
 
Manage episode 517822614 series 2953326
Content provided by Remember Me Podcast. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Remember Me Podcast or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://podcastplayer.com/legal.

We’re tackling the question - Should I get genetic testing?

We have the incredible return guest - Erynn Gordon, CGC, program manager at Progranulin Information Navigator. We also brought on some incredible advocates in the FTD Community - Annika from Cure MAPT FTD, Jackie & Wanda from CureGRN and Michael from End the Legacy to share their personal experiences and thought processes around genetic testing.

Let us know what you think when you listen. - R+M

A VERY special thank you to today’s sponsors Progranulin Information Navigator and Psilera.

FTD Genetic Resources:

Progranulin Information Navigator

Cure MAPT FTD

CureGRN

End The Legacy - ALS & FTD

FTD Disorders Registry

The Penn FTD Center Genetics Resources

The AFTD Genetics Overview

The National Society of Genetic Counselors

UCSF Memory Familial FTD Page

Want to support the podcast + get more content? Join us on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Patreon⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠! You get exclusive content + a space to share and connect with others. ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠www.patreon.com/remembermecommunity⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠

If you're curious about anything RM, we'd love to connect with you on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Instagram, and visit ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠our website at⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ www.remembermeftd.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠, all the latest updates!

------

Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD).

Always, always accept the good.

  continue reading

166 episodes

All episodes

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