Mel's daughter Katelin is 26 and living with Rett Syndrome.

It was such an honour to sit down with Mel not only once, but twice, for the podcast. I openly admit that I have alot of learning to do, so talking with Mel was such a great learning experience for me.

We talk about a range of things - from her writing, to Atypical Rett Syndrome, to the clinical trials they were involved in. Mel's blog Trail to a Texas Trial is an amazing recount of everything they've experienced with Rett Syndrome and with the Trofinetide trial.

This is Part 1 of our chat!

To find out more about this episode and links to the topics we discussed, please visit teamjovie.com/podcast.

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Thanks so much for listening,

Tracey

teamjovie.com