The latest in PWSA | USA events and PWS news in research, family support, and advocacy. 

24 Hour Crisis Line: 941-312-0400

Make-A-Will Month

Your PWS Story Matters—And the Legacy You Leave Can Echo Far into the Future - Prader-Willi Syndrome Association | USA

Planned Giving | PWSA USA

PWSA Memory

PWSA Memory: PWSA Conference Held with Prader-Willi California Foundation in 1999 - Prader-Willi Syndrome Association | USA

Share your PWSA Memory: 50 Year Anniversary - Prader-Willi Syndrome Association | USA

Events

PWSAUSA 50th Anniversary: Journey of Hope Celebration - Campaign

Fundraisers

2nd Annual Dance Silly for Prader-Willi - Prader-Willi Syndrome Association | USA

Contact email: [email protected]

16th Annual Hunter Lens Golf Tournament - Prader-Willi Syndrome Association | USA

PWSA Fundraising Pages - Campaign

Spotlight on Hope

Volunteer Spotlight: Melissa Rivas - Spreading Joy, Creativity, and Hope - Prader-Willi Syndrome Association | USA

Share Your Story - Prader-Willi Syndrome Association | USA

Advocacy

Exciting News! PWS Included in FY26 Department of Defense Appropriations Bill for Medical Research

Medicaid-Fact-Sheet-1.pdf

Help Expand Disability Services for PWS – Share Your Story - Prader-Willi Syndrome Association | USA

Family Support

Understanding Gastric Motility and Gastroparesis in PWS - Prader-Willi Syndrome Association | USA

Building Our Social Skills (BOSS) Program Begins Again - Prader-Willi Syndrome Association | USA

Ask Nurse Lynn: Leptin and Hyperphagia

Submit your own non-emergency medical question: Ask Nurse Lynn - Prader-Willi Syndrome Association | USA

Research

Harmony Biosciences TEMPO Trial Webinar: Webinar Registration - Zoom

Aardvark Therapeutics HERO Trial: U.S. Sites Now Open - Prader-Willi Syndrome Association | USA

www.heroforpws.com

Announcements/Resource Spotlight

Qualifying for Social Security Disability with PWS

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