The latest in PWSA | USA events and PWS news in research, family support, and advocacy.

Please remember to leave a rating and a review.

PWSA | USA’s Annual Report: Online Flipbook

United in Hope Conference

Home - 2025 United in Hope PWS Conference

Mural: 2025 PWS Conference Mural Photo Submission - Prader-Willi Syndrome Association | USA

For info on sponsorship opportunities: [email protected]

50th Anniversary

PWSA Memory: Pioneering geneticist Merlin G. Butler, M.D., Ph.D., keeps pushing the boundaries of science

Share your PWSA Memory: 50 Year Anniversary - Prader-Willi Syndrome Association | USA

Events

VYKAT XR (formerly DCCR) informational webinar

Home | VYKAT XR (diazoxide choline) extended-release tablets

Prader-Willi Alliance of New York Inc. - Events

Fundraisers

United We Brunch - Campaign

PWSA Fundraising Pages - Campaign

Spotlight on Hope

Spotlight on Hope Library

Share Your Story - Prader-Willi Syndrome Association | USA

Advocacy

PWS Awareness Month Proclamation Toolkit

[email protected]

[email protected]

Family Support

Sibling Support Guide

What It's Like to Have a Sibling with PWS - Prader-Willi Syndrome Association | USA

Send your sibling blog to [email protected]

A Loving School is Vital - Prader-Willi Syndrome Association | USA

Ask Nurse Lynn: Food-Seeking Behaviors - Prader-Willi Syndrome Association | USA

Ask Nurse Lynn - Prader-Willi Syndrome Association | USA

Research

Prader-Willi Syndrome Clinical Scholarship Announcement - Prader-Willi Syndrome Association | USA

Request for Prader-Willi Syndrome Research Grant Applications - Prader-Willi Syndrome Association | USA

Announcements/Resource Spotlight

Q-and-A_Blue.pdf

Intro Music: https://www.bensound.com/; License certificate #2242442