Chantal Donnelly has a strength that could move mountains and a positivity that will fill your day with such joy. Her beautiful son Soul was born with a rare condition called SENS, only diagnosed this year after 18 months of investigations, discovering new symptoms and piecing together a very complex puzzle.
In this episode we chat about Chantal's textbook pregnancy and birth and the immediate period following birth that revealed something was not quite as 'textbook' for her son.
Chantal shares her insights on what has helped her to manage the trauma of having her newborn suddenly transferred to another hospital shortly after birth, the journey of discovering Souls rare diagnosis and the complex medical world that she currently navigates to help Soul reach his full potential.
This episode supports the charity Face Quality International who are working to create a world where those with facial disfigurements are free to be themselves and thrive https://faceequalityinternational.org/
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