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Voices Uncovered: Understanding Mental Health in Rare Diseases using Social Listening

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Manage episode 509061603 series 2324999
Content provided by Partners4Access. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Partners4Access or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://podcastplayer.com/legal.

In this episode, we tune into the unfiltered voices of patients and caregivers navigating life with rare conditions.

Through the power of social listening, we uncover the hidden struggles around mental health—stories often left unsaid in clinics but shared openly online.

Joined by Lauren Roberts from Rareminds, we explore what these conversations reveal, why they matter, and how they can reshape support for rare disease communities.

  continue reading

103 episodes

Artwork
iconShare
 
Manage episode 509061603 series 2324999
Content provided by Partners4Access. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Partners4Access or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://podcastplayer.com/legal.

In this episode, we tune into the unfiltered voices of patients and caregivers navigating life with rare conditions.

Through the power of social listening, we uncover the hidden struggles around mental health—stories often left unsaid in clinics but shared openly online.

Joined by Lauren Roberts from Rareminds, we explore what these conversations reveal, why they matter, and how they can reshape support for rare disease communities.

  continue reading

103 episodes

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