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Lighting the Way: A Story of Love, Friendship, and Finding New Dreams - CERT1 w/ Samantha & Wesley Rogers

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Manage episode 462664920 series 2918477
Content provided by Effie Parks. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Effie Parks or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://podcastplayer.com/legal.

In this inspiring episode of Once Upon a Gene, I sit down with Samantha and Wesley Rogers, founders of Lottie’s Light Foundation, and proud parents of the incredible Lottie, who lives with a CERT1 mutation. The Rogers share the heartfelt story of how their journey with Lottie led to the creation of a foundation dedicated to empowering families, fostering connections, and encouraging others to find strength in the face of challenges.

We explore how their mission encourages fighting for meaningful friendships, dreaming new dreams, and discovering untapped capacity for love and purpose. This conversation will leave you uplifted, motivated, and ready to celebrate the light that shines in every rare journey.

Highlights:

  • The heartfelt origin story of Lottie’s Light Foundation.
  • Insights into Lottie’s personality, resilience, and the joy she brings to those around her.
  • How the foundation inspires families to fight for friendships and redefine their dreams.
  • Samantha and Wesley’s advice on finding your capacity in the hardest moments.
  • Tips for building friendships and community in the rare disease world.
  • A reminder of the power of community and the importance of showing up for Rare Disease Day.

Mentioned in This Episode:

Call to Action:

Let’s spread the light! Share this episode with your friends and community to celebrate the resilience, strength, and brilliance of the rare disease journey. If you’re in San Diego or feeling adventurous, join us for Rare Disease Day 2025! Details coming soon.

As always, don’t forget to rate, review, and subscribe to Once Upon a Gene. Your support helps bring these powerful stories to more ears!

  continue reading

343 episodes

Artwork
iconShare
 
Manage episode 462664920 series 2918477
Content provided by Effie Parks. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Effie Parks or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://podcastplayer.com/legal.

In this inspiring episode of Once Upon a Gene, I sit down with Samantha and Wesley Rogers, founders of Lottie’s Light Foundation, and proud parents of the incredible Lottie, who lives with a CERT1 mutation. The Rogers share the heartfelt story of how their journey with Lottie led to the creation of a foundation dedicated to empowering families, fostering connections, and encouraging others to find strength in the face of challenges.

We explore how their mission encourages fighting for meaningful friendships, dreaming new dreams, and discovering untapped capacity for love and purpose. This conversation will leave you uplifted, motivated, and ready to celebrate the light that shines in every rare journey.

Highlights:

  • The heartfelt origin story of Lottie’s Light Foundation.
  • Insights into Lottie’s personality, resilience, and the joy she brings to those around her.
  • How the foundation inspires families to fight for friendships and redefine their dreams.
  • Samantha and Wesley’s advice on finding your capacity in the hardest moments.
  • Tips for building friendships and community in the rare disease world.
  • A reminder of the power of community and the importance of showing up for Rare Disease Day.

Mentioned in This Episode:

Call to Action:

Let’s spread the light! Share this episode with your friends and community to celebrate the resilience, strength, and brilliance of the rare disease journey. If you’re in San Diego or feeling adventurous, join us for Rare Disease Day 2025! Details coming soon.

As always, don’t forget to rate, review, and subscribe to Once Upon a Gene. Your support helps bring these powerful stories to more ears!

  continue reading

343 episodes

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