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The Phantom Broad Autism Phenotype: When Science Meets Community

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Manage episode 498288200 series 3671169
Content provided by NeuroRebel. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by NeuroRebel or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://podcastplayer.com/legal.

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What happens when an entire community of experts says the thing you're studying doesn't actually exist?

In this investigative deep-dive, Anita examines the Broad Autism Phenotype (BAP) - a widely accepted scientific concept claiming autism-related traits exist on a continuum in families. But when autistic researchers were finally asked what they thought, their responses should have revolutionized the field.

Join Anita as she unravels the story of twenty autistic researchers, a survey that challenged decades of genetic studies, and Nick Chown's groundbreaking question: Are "autistic traits" real or mythical?

This episode reveals:

  • Why do BAP prevalence estimates range wildly from 2.6% to 80%
  • How researchers use "autistic traits" without defining the term
  • What autistic scholars actually think about this research
  • Why do the same behaviors get pathologized in some contexts but not others
  • An alternative explanation that could change everything

"Everyone stims, but we only call it that and pathologize it when certain neurodiverse people do it." - Alyssa Hillary, autistic researcher

This isn't just about one research concept - it's about whose voices get heard in science, what happens when communities challenge established narratives, and why we need research WITH autistic people, not just ON them.

The broad autism phenotype might be a phantom, but autistic community wisdom is very real.

Content note: Discussion of genetic research and pathologization of traits.

Support the show

Thank you for listening to Neuro Rebel — the bilingual podcast where we flip the script on what it means to think differently. I’m your host, Anita: autistic, gifted, and a retired law professor on a mission to bring rigor, empathy, and a dash of rebellion to conversations about neurodiversity.

🔍 What we do:
Each week, we blend evidence-based deep dives, solo reflections, and candid interviews with researchers and lived-experience experts. Expect English ↔ Español segments, sharp wit, real stories and actionable insights you can share with friends, colleagues, and classrooms.

🎧 Stay connected:
• Subscribe on Apple Podcasts, Spotify, Pocket Casts, or wherever you listen.
• 📲 Follow us on Instagram and TikTok @neurorebelpodcast for bonus clips, show notes, and community prompts.
• 💌 Join our mailing list at https://www.neurorebelpodcast.com for episode transcripts, resource guides, and early access to live Q&As.

🤝 Support the show:
If Neuro Rebel sparks new questions, challenges assumptions or simply makes you feel seen, please tell a friend or leave a rating—it means the world. You can also support us directly with a one-time donation or “buy me a coffee” at www.neurorebelpodcast.com/support Your generosity keeps this project fiercely independent, bilingual, and free of corporate agendas.

⚠️ Disclaimer:
Opinions expressed here are mine alone and do not constitute professional...

  continue reading

18 episodes

Artwork
iconShare
 
Manage episode 498288200 series 3671169
Content provided by NeuroRebel. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by NeuroRebel or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://podcastplayer.com/legal.

Send us a text

What happens when an entire community of experts says the thing you're studying doesn't actually exist?

In this investigative deep-dive, Anita examines the Broad Autism Phenotype (BAP) - a widely accepted scientific concept claiming autism-related traits exist on a continuum in families. But when autistic researchers were finally asked what they thought, their responses should have revolutionized the field.

Join Anita as she unravels the story of twenty autistic researchers, a survey that challenged decades of genetic studies, and Nick Chown's groundbreaking question: Are "autistic traits" real or mythical?

This episode reveals:

  • Why do BAP prevalence estimates range wildly from 2.6% to 80%
  • How researchers use "autistic traits" without defining the term
  • What autistic scholars actually think about this research
  • Why do the same behaviors get pathologized in some contexts but not others
  • An alternative explanation that could change everything

"Everyone stims, but we only call it that and pathologize it when certain neurodiverse people do it." - Alyssa Hillary, autistic researcher

This isn't just about one research concept - it's about whose voices get heard in science, what happens when communities challenge established narratives, and why we need research WITH autistic people, not just ON them.

The broad autism phenotype might be a phantom, but autistic community wisdom is very real.

Content note: Discussion of genetic research and pathologization of traits.

Support the show

Thank you for listening to Neuro Rebel — the bilingual podcast where we flip the script on what it means to think differently. I’m your host, Anita: autistic, gifted, and a retired law professor on a mission to bring rigor, empathy, and a dash of rebellion to conversations about neurodiversity.

🔍 What we do:
Each week, we blend evidence-based deep dives, solo reflections, and candid interviews with researchers and lived-experience experts. Expect English ↔ Español segments, sharp wit, real stories and actionable insights you can share with friends, colleagues, and classrooms.

🎧 Stay connected:
• Subscribe on Apple Podcasts, Spotify, Pocket Casts, or wherever you listen.
• 📲 Follow us on Instagram and TikTok @neurorebelpodcast for bonus clips, show notes, and community prompts.
• 💌 Join our mailing list at https://www.neurorebelpodcast.com for episode transcripts, resource guides, and early access to live Q&As.

🤝 Support the show:
If Neuro Rebel sparks new questions, challenges assumptions or simply makes you feel seen, please tell a friend or leave a rating—it means the world. You can also support us directly with a one-time donation or “buy me a coffee” at www.neurorebelpodcast.com/support Your generosity keeps this project fiercely independent, bilingual, and free of corporate agendas.

⚠️ Disclaimer:
Opinions expressed here are mine alone and do not constitute professional...

  continue reading

18 episodes

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