112: MSIF – Past, Present and Future with Peer Baneke and Lydia Makaroff

MS-Perspektive - The Multiple Sclerosis Podcast

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Learn how MSIF is shaping a better future for people with MS—through global collaboration, advocacy, and the power of lived experience.

Read the interview highlights on my blog: https://ms-perspektive.com/112-msif

The Multiple Sclerosis International Federation (MSIF) plays a vital role in uniting the global MS community to improve the lives of people affected by multiple sclerosis. In this inspiring interview, Peer Baneke, former CEO, and Lydia Makaroff, the new CEO, share their insights on past milestones, current challenges, and the future vision of MSIF. From global access to treatments, early diagnosis, and mental health support to patient-led research and digital innovation—this conversation offers valuable perspectives for anyone living with MS or working to support those who do.

👉 Take a moment to listen to the full podcast episode or read the interview highlights—whether you’re living with MS, supporting a loved one, or working in the field, there’s something here for you. Let’s stay connected, informed, and inspired—together with the global MS community. 💪🧡

Table of Contents

Introduction & Personal Insights Peer, you recently retired after many years at MSIF. Could you briefly introduce yourself and share a personal hobby that kept you grounded during your time as CEO?

Peer Baneke: I’m Peer Baneke, and I served as CEO of MSIF for 18 years. Before that, I worked in human rights and refugee support. MS is close to my heart—my father had MS—and I’ve lived in and around London for over 40 years. What keeps me grounded is my family and cycling. Now that I’m retired, I enjoy even more time for it.

Lydia, congratulations on your new role! Can you tell us a bit about your background and what motivates you to lead MSIF?

Lydia Makaroff: Thank you! I grew up in Australia and worked in the US, Belgium, and now here. I’ve always believed in international collaboration. My background spans science, the pharmaceutical industry, and civil society. What drives me is the opportunity MSIF has to truly create global change for people affected by MS.

Peer, what message of hope would you like to share?

Peer Baneke: There will be progress. Despite global challenges, research and advocacy are moving forward. The commitment of the MS community gives me great hope for the future.

Lydia, where can listeners learn more about MSIF?

Lydia Makaroff: Visit www.msif.org, and follow us on Instagram or LinkedIn. Also, check out www.worldmsday.org and join our MS Heart Challenge on May 30th.

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Thank you for the incredible achievements so far, and for all the important work MSIF is doing and will continue to do in the future.

See you soon and try to make the best out of your life, Nele

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