The Invisible Battle We Need to Talk About
Manage episode 480165908 series 3659236
The journey of patient advocacy begins with a single, powerful truth: your health story matters. In this debut episode of the CHLMS MEDI HELPZ Foundation podcast, we meet Jacquiline Cox - lupus warrior, author, and living testimony that medical predictions don't define your destiny.
Three years ago, a doctor told Jacquiline she had just three months to live. Today, she stands as an ambassador for Walk for Lupus Now, a 15-time bestselling author, and a beacon of hope for those navigating the complicated reality of invisible illness. With raw emotion and unflinching honesty, Jacquiline shares the daily challenges of living with lupus, fibromyalgia, and thyroid cancer while managing a business, raising a family, and advocating for better patient care.
"Just because you can't see it doesn't mean we're not struggling," Jacquiline reminds us, challenging the dismissive attitudes that chronically ill patients often face. Her practical wisdom offers a roadmap for others: track your symptoms, know your medical information, understand your insurance coverage, and most importantly, build a circle of support who truly understands your specific challenges.
The foundation of this podcast rests on a revolutionary concept - patients don't just deserve a seat at the healthcare table; they need their own table where experiences can be shared without judgment, where education replaces fear tactics, and where collective wisdom creates paths toward better health outcomes. Whether you're battling chronic illness or supporting someone who is, this episode offers both practical strategies and emotional sustenance.
Have a patient story that deserves to be heard? Reach out to the CHLMS MEDIHELPZ Foundation. Your voice matters, your experience can heal others, and together, we're creating a patient uprising built on empowerment, education, and community.
Chapters
1. The Invisible Battle We Need to Talk About (00:00:00)
2. Welcome to Patient Uprising (00:00:27)
3. Meet Jacqueline: Lupus Warrior (00:04:02)
4. Refusing to Accept the Diagnosis (00:10:31)
5. Being Strong While Invisible (00:17:03)
6. Turning Pain into Paper (00:22:57)
7. Practical Tips for Lupus Warriors (00:28:16)
8. Building Your Support System (00:34:06)
2 episodes