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How to Tell People You Have Parkinson's: A Guide to Communicating Your Diagnosis
Manage episode 498636014 series 3519127
The moment of diagnosis is challenging, but what comes next can be just as daunting: telling your family, friends, and colleagues. In this powerful episode of Live Parkinson's - Live an Exceptional Life, we provide a compassionate and practical roadmap for navigating the conversation about Parkinson's disease. We address the emotional weight of disclosure, offer actionable scripts for different social situations, and empower you to take control of your narrative.
This isn't about revealing a weakness; it's about building a powerful support system. Tune in to learn how to communicate your diagnosis with confidence and grace, and turn a difficult moment into an opportunity for deeper connection.
In this episode, we cover:
- The emotional and psychological barriers that make disclosure so difficult.
- A tiered approach to talking about Parkinson's with your inner, middle, and outer social circles.
- Practical scripts and strategies for a planned conversation or an on-the-spot response.
- The power of sharing your story and the relief that comes with being open.
- How to gracefully handle questions like "You don't look like you have Parkinson's."
Want more resources to live an exceptional life with Parkinson's?
- Visit my website: Subscribe to the FREE Monthly Newsletter at Liveparkinsons.com.
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Hashtags: #Parkinsons #ParkinsonsDisease #PD #LivingWithParkinsons #ParkinsonsAwareness #ParkinsonsSupport #Diagnosis #Disclosure #ParkinsonsCommunity #ChronicIllness #Neurology #LiveExceptional #CopingSkills #ParkinsonsLife
Disclaimer: This podcast is for educational purposes only is not intended to treat or diagnose Parkinson's Disease. Please ensure that you are following the treatment plan developed by your doctor. Please ensure before starting anything new you get approval from your doctor. The information being provided is based on my own personal experiences and does not guarantee that it will benefit everyone.
Disclosure: I discuss and promote products in this podcast that pay me a small commission at no cost to you. I use the commissions to help support this podcast and my website Liveparkinsons.com. I make you aware of any affiliate links by adding AFFLIATE Link right beside the link. Thank you for supporting this podcast.
To help support the podcast please visit me on my Ko-fi page and buy a cup of coffee if you feel that I am providing information that is relevant and actionable to help you live a better quality of life.
Please visit me at Liveparkinsons.com
Get my book - Spectacular Life - 4 Essential Strategies for Living with Parkinson's - My Journey to Happiness
Chapters
1. Introduction to Disclosure Challenges (00:00:00)
2. Why Telling Others Is So Difficult (00:01:40)
3. The Tiered Approach to Disclosure (00:03:17)
4. Research on Disclosure Patterns (00:06:04)
5. How to Tell Your Inner Circle (00:10:51)
6. Handling "You Don't Look Sick" Comments (00:13:51)
7. My Personal Disclosure Journey (00:18:18)
8. Building Your Support Network (00:25:30)
107 episodes
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