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Episode 544 - LaRae Hacker

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Manage episode 516153959 series 1547852
Content provided by phaware global association and Phaware global association. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by phaware global association and Phaware global association or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://podcastplayer.com/legal.

How TBX4Life Is Fueling a Global Collaboration LaRae Hacker never set out to become a rare disease advocate—but when her daughter's TBX4 diagnosis left her feeling helpless, she found power in connection. Discover how TBX4Life became her anchor in uncertainty and why she believes parent-led advocacy is the key to progress in rare disease research. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a cure: www.phaware.global/donate #phaware Share your story: [email protected] @TBX4_Life

  continue reading

552 episodes

Artwork
iconShare
 
Manage episode 516153959 series 1547852
Content provided by phaware global association and Phaware global association. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by phaware global association and Phaware global association or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://podcastplayer.com/legal.

How TBX4Life Is Fueling a Global Collaboration LaRae Hacker never set out to become a rare disease advocate—but when her daughter's TBX4 diagnosis left her feeling helpless, she found power in connection. Discover how TBX4Life became her anchor in uncertainty and why she believes parent-led advocacy is the key to progress in rare disease research. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a cure: www.phaware.global/donate #phaware Share your story: [email protected] @TBX4_Life

  continue reading

552 episodes

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