))
154: Don’t Let It Get to You: Living & Growing with FSHD with Kendra Vaalemon
Manage episode 502541604 series 3410030
Content provided by FSHD Straight Talk. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by FSHD Straight Talk or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://podcastplayer.com/legal.
This week, Tim spoke with Kendra, an Idaho resident with a family history of FSHD. Diagnosed at age 9, Kendra knew she had FSHD as early as 6 as her symptoms resembled those of her older brother. Kendra discusses how her faith helps her deal with the constant grieving process caused by FSHD: the grief at losing her brother so young and the grief that comes with each changed ability and lost muscle. Kendra’s story is one of perseverance, community support, love, and dark humor in the wake of FSHD relentless progression.
168 episodes
Share
