))
#48 - Julien: Aspartylglucosaminuria, life as an EMT
Manage episode 454820879 series 3461803
Content provided by Sero. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Sero or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://podcastplayer.com/legal.
Aspartylglucosaminuria (AGU), is a rare and fatal disease that currently has no treatment. Julian shares the experience of Julia Taravella, and her children Daniel and Alexander.
Julian was an EMT, and has first hand experience with the American medical system. To support this podcast please consider donating to the cause:
https://www.raretrait.com/home_1
https://www.amazon.com.br/Nazira-Purrpose-like-other-English-ebook/dp/B0DNHX7BJQ
Blog: https://blog.ethers.club/
Social: https://x.com/0x_Sero
Github: https://github.com/Seroxdesign
54 episodes
Share
