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What happens when motherhood and chronic illness collide, and how do we turn that into advocacy?
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We explore the hard edges of parenting with endometriosis—pregnancy losses, grief, guilt, and the small wins that keep us going—and how those experiences drove us into advocacy that meets medicine where it starts: in classrooms. Along the way we talk kids’ questions, self‑grace, and building real community support.
• balancing parenting with chronic pain and fatigue
• pregnancy, miscarriage, and fear of recurrence
• children witnessing pain and asking about risk
• guilt, comparison, and redefining “good mom”
• individualized disease, individualized care
• post‑op healing, pacing, and self‑grace
• teaching kids to self‑advocate with doctors
• educating medical students to spot endo earlier
• outdated research vs evidence‑based care
• community support through Endofriend and campus outreach
• many paths to advocacy, from letters to events
Reach out if you have questions—I do get back to you
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Website endobattery.com
Chapters
1. Parenting with Chronic Illness (00:00:00)
2. Introducing Indobattery and Nikki (00:02:05)
3. Pregnancy, Loss, and Medical Gaslighting (00:03:45)
4. Kids Seeing Pain and Inheriting Fear (00:06:20)
5. Homeschooling While Managing Symptoms (00:09:10)
6. Surgery, Healing, and Self‑Grace (00:12:20)
7. Identity, Comparison, and Motherhood Guilt (00:14:45)
8. Teaching Kids to Self‑Advocate (00:17:40)
9. From Patient to Advocate (00:21:05)
10. Educating Medical Students (00:23:25)
11. Outdated Research and Individualized Care (00:25:45)
12. Pushing GI and Primary Care to Consider Endo (00:28:05)
13. Writing Doctors and Seeking Change (00:30:00)
14. Building Community: Endofriend and Campus Outreach (00:31:40)
15. Making Endo a Household Word (00:34:05)
16. Many Paths to Advocacy (00:36:30)
17. The Power of Support and Belonging (00:38:20)
18. Closing Reflections and Gratitude (00:40:20)
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