In this episode of Beyond the Count, host Danielle Boyle is joined by Barbara Lovrencic, ITP patient advocate, President of AIPIT (Italy’s ITP patient organisation), and Vice Chair of the International ITP Alliance.
Together, they explore the real-world impact of shared decision making, what it looks like when it works well, and how it can go wrong when patients feel unheard. Barbara shares her early experiences of being diagnosed as a child and how the lack of information and involvement shaped her journey. Danielle reflects on how things are improving, why being informed makes all the difference, and the power of open, honest communication between patients and clinicians.
Whether you’re a patient, carer or health professional, this conversation is a must-listen for anyone wanting to understand how collaboration leads to better outcomes and better care.

Support the show

Thanks for listening to Beyond the Count
For more information, resources and lived experiences about Immune Thrombocytopenia (ITP), visit ITPANZ.org.au.

📱 Follow us on social media:
Instagram: @ITP_ANZ
Facebook: facebook.com/ITPANZ
LinkedIn: ITP Australia & New Zealand
YouTube: @ITPANZ

🎧 Subscribe to Beyond the Count on your preferred podcast platform so you never miss an episode.

Do you have feedback or a story to share? We’d love to hear from you. Get in touch at [email protected]